My Brain Likes to Rock and Roll!!!

Re: Re: Re: My Brain Likes to Rock and Roll!!!

Submitted by gretchen1 on Sun, 2006-06-11 - 15:54

I LOVED that = "that's impossible". Well then, what's the implication? You're a liar? I used to get that crap from m first wannabe neuro clunker too. I was going through horrid AED trials. Have since found out he didn't have a clue how to do an AED trial correctly. Such as if you're having horrid side effects you go OFF that medication, you don't ratchet it up and down for 3 months. I always got the crimp with any new AED after going through some horrors on 3, so I could read any possible side effect to make sure what I was feeling was a side effect, not something else. One night very quickly everything looked purple or had a strong colored purple cast. At the sametime I had had a seizure and when I recovered my right side would barely move. Obviously my first bout with Todd's Paralysis. But it scared me. I'd never even heard of Todd's Paralysis. I called him in the evening and told him these things. I'm sorry but seeing everything look deep purple was not listed in the literature nor was paralysis and I was fairly sure I was having a stroke and was very frightened. I wasn't trusting my brain at that time for anything. He said - he didn't "recognize" the symptoms but he wasn't worried, didn't sound much to HIM and see him in the morning. First first off I wasn't worried, second why didn't a neuro recognize Todd's. I wasn't worried about HIS worry I was terrified. What about my worry? I couldn't move my right side, I couldn't see right. Then I wondered if he was saying - you're a kook. Then I started wondering maybe I AM a kook. You can not make a telephone diagnosis. I at least learned that in nursing school. I asked him should I go to the ER, he said no, I'll see you in the morning, now loosing patience like I'm a whiney 3 year old. Finally I broke down and said I'm scared, I really think I'm having a stroke. Nope, he didn't think so. My husband and I were so intimidated about all these new things. I'd already had to reschedule my neuropsych eval twice because I was too mindless on Lamictal before to be able to speak I was getting worried about these drugs. So we SNUCK off to another town's emergency room. Thesse conditions very easily diagnosed and they said you're having a medication reaction and Todd's Paralysis. I was HAPPY then I was having paralysis and everything looked purple so I could rub it in this "doctor's" face the next day. The next day when I realized my doctor and I were competing? I felt we probably had a bad relationship but in our area -he was IT. The one, the only neuro. Now that I've had E this long my personal opinion is it can make you feel, experience any old thing it wants to. My very good epileptologist see's me periodically and always asks me - what's new. Then he LISTENS, and he EXAMINES, and if he has no explanation he says so but he never acts like I didn't or don't have these things. He does tell me he keeps an inventory on his computer of all these sensations and wierd events patients tell him and it is a very LONG list. Thank you, I need that respect. I am getting worsening peripheral neuropathy from one of my AEDs is the thought in my feet thus current huming. But I've had this for well over a year- and I just started huming. And I do not like it,one bit. I was on chat last night and my head started clicking. I didn't think I lost cognition when that happened but when it let up for a few, I could see my typing was falling apart and got off. Gretchen