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Months of no driving, no working
Tue, 04/15/2014 - 11:50Hi, I'm new to the website and hoping everyone here has been seizure free! I was diagnosed with epilepsy back in 2005 at age 16. I have been on countless amounts of medications that either don't work or have side effects I can't live with. I was actually rediagnosed this year from focal to generalized epilepsy.(my second EEG in 7 years) so being on the wrong medications had something to do with it. Right now I am on Vimpat 200mg a day and still no success. I feel sick and loopy all day and still having seizures. I go back in to see my neuro in about a week for yet another medicine change. I have had to move back in with my parents along with my boyfriend because I can't work or drive. I am becoming depressed as I am an independent person and like providing for myself and my household. Where we are doesn't have public transportation so I can't even rely on that even if I felt good enough to work. I just need some wisdom or help with coping. Thank you!!!
Comments
I really do have a great
Submitted by Biff35 on Tue, 2014-04-15 - 14:42
I really do have a great support system and I do appreciate everything they do, I start to feel bad being so dependent on them though. My main hobbies are offloading and motocross, which are things I shouldn't do right now. I will definitely look into that transportation, never even heard of that! Thank you :)
Tell me about it...been on
Submitted by mkosloske on Tue, 2014-04-15 - 19:09
Tell me about it...been on driving restriction for the past 4 months after having my license for 30 years! I know firsthand how concerned you are about being a burden. You can't stress out about it - your family and friends care about you and put their concerns for your safety and well-being above any inconvenience it may cause them. Also, check with your employer about the possibility of working from home. My employer approved a part-time work from home arrangement for 3 months. That helped alot! It will go by faster than you think - try to stay positive.
I haven't asked about the VNS
Submitted by Biff35 on Tue, 2014-04-15 - 14:42
I haven't asked about the VNS or RNS, I don't know much about them honestly. I'll look into that! I just went in for a 7 day EEG and he was an epileptologist but that's it. Is this someone I can visit like I do my neuro? Thank you so much for you help!