Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Migraines that act like seizures?
Tue, 01/16/2007 - 16:34I had my first appointment with my new neurologist today. He has decided that I do NOT have a seizure disorder, but that I am far more likely to be suffering from migraines.
I don't know what to say or do. He is an epileptologist and I was evaluated at the epilepsy centre.
He said that if I am suffering from seizures, my symptoms would be the same for every episode. I don't know if I am convinced, but hey, he is the specialist.
I think I want to give it all up and let the chips fall where they may.
I don't think I care anymore.
I'm too fed up to care.
Comments
Please don't give up, my mum
Submitted by kazm63 on Tue, 2017-05-02 - 06:54
Please don't give up, my mum has always had migraines, at 7yrs old I experienced flashing lights that led to a three day headache, experienced another at 13 not sure what happened in between as i'm now 40. However at around 14 I started to experience strange feelings of de javu this would never lead to anything. Neurologists diagnosed me with epilepsy and started me on tegretol, I came out in a rash so was told to stop taking it. I did, this caused my first grand mal. Which now is obvious that it was caused by the rapid withdrawal of the medication. I tried many combos of drugs, nothing ever stopped the de javu type sensations. I only ever had seizures when something interacted with my meds. Leading me to wonder if it was epilepsy. I have had my left temporal lobe removed and still have these sensations, only had it done as they were adamant it was epilepsy. I have two children who have disabilities caused by valproate, I have massive headaches lasting 2-3 days not following a seizure. Still have the deja vu, still only have seizures when I get given wrong meds. My mum, brother, sister and niece all get migraine yet I am the only one diagnosed with epilepsy. Please don't let them go too far on the epilepsy train, looking back I wish I'd done more research, but I was still young and trusted their opinions.
Hi people I suffered with
Submitted by Shielsy83 on Sat, 2018-01-27 - 02:03
Hi people I suffered with epilepsy from being a basically a new born child almost up until the age of 8 nd touch wood I aint had a fit since however since I am now in my 30's for the past 2 year I have been having ocular migranes and flashes seen my gp and he tells me it' just this just wondering are they linked
My 16 year old daughter has
Submitted by Honubeth on Thu, 2018-11-01 - 13:38
My 16 year old daughter has had migraines for 5 years, since her first period. She has an aura, and the right side of her body will "twitch" . This has changed over time to what looks like full blown seizures with every migraine. Hands and feet go numb, had aura, then shaking starts. Just did EEG where they were able to induce the migraine/seizure. They say it's not epileptic and want her to see a psychiatrist because they can't say the twitching from years past is related. OF COURSE IT'S RELATED. I'm so frustrated. My child is not crazy, or depressed, or anxious. Where do I go from here??????