Medical Marijuana and Juvenile Myoclonic Epilepsy

Hello, we are going to try CBD oil and valerian for our son. Can you tell me how you are doing now that it has been over 90 days?

Hi Julie. My daughter, who is 17 now is starting to be weened off Depakote and onto Keppra.  Also diagnosed with JME at 2-3 years old. Curious as to what your side effects were and if you were seizure free on Keppra.  Depakote has been good to her but her dr is concerned with its long term effects.

I take Depakote and it works 100% of the time if I’m doing my part by eating and sleeping enough. I stopped taking it for 2 months this past summer July/August medium, then high levels of cbd to at least give it a shot. I had no grand mals but experienced the same amount of micro seizures that I have experience on days when I’ve forgotten to take my depakote in the past. That’s just my experience but the average neurologist doesn’t want to see you have seizures under their care, so definitely consult with them first, a doctor that prescribes medical marijuana is usually not nearly as experienced in treating epilepsy as a neurologist. Proceed with caution, your life is not worth all the hype surrounding cbd, unfortunately there have not been nearly enough studies done with it in terms of epilepsy, and people get too excited when they see the extremely effective yet by numbers, still rare cases where mmj does work. If it were truly that effective, more doctors would be prescribing it where it’s legal at least to improve their rates of success in their personal practice, which is the whole point of what they do.