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JME
Tue, 08/07/2007 - 10:52Hi all,
You have probably seen lots of my threads on here as I seem to have so many questions spinning round my head at the moment! Today after 15 years I have diagnosed with JME!!! Can´t believe it has taken so long. Originally on Tegretol 400g per day which partially controlled seizures although made myoclonic seizures worst. I was then on 250mg Lamictal per day and today increased to 300mg. Anyone know what the normal dose for control is with Lamictal. Can anyone give me experiences on lifestyle with JME. I am a very social person and like to go out for dinner at the weekend and enjoy a glass of wine or 2 with dinner. My neuro has told me not to drink at all, it´s just I seem to be fine for about 4 months having a few glasses of wine at the weekend and then BAM a grand-mal hits! Can´t understand why this is. Surely if it was the alcohol it would happen every time I drank? Any advice. I basically want to know what has worked with other people even though I now it is a very individual thing. Anyone - please help as really want to get this under control now. Take care
Jo
Re: Re: Re: JME
Submitted by confused924 on Fri, 2007-10-12 - 11:44
My 14 year old daughter has been diagnosed with JME. She has had two grand mal seizures, the arm jerks and the absence seizures. She is taking 1000 mg of Keppra/day. It's only been 3 weeks so i don't know if it's too soon to know if this is working for her or not. The large arm movements don't appear to be happening but her hands seem to tremor. Does anyone else experience this and do you know if this is a result of the medicine or are these considered seizures?