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im totally lost!!!!!!!
Mon, 07/17/2006 - 15:09Ive just been told i got epilepsy and ive lost my car n cant drink anymore 2 things i have to say i liked and thought i needed. im not lookin 4 pity im just very lost and need some1 to talk to i dont have many seizures but it scares me! im on epilim 3 a day please can sum1 talk to me as im finding doctors useless.
Comments
Re: im totally lost!!!!!!!
Submitted by romaboots on Wed, 2006-08-09 - 23:04
Edel: Although everyone is different with their seizures and meds, my neurologist said I could have an occasional glass of wine with a regular meal. He said I should try a half glass and see how I react and feel with a meal. I'm on Trileptal, and haven't tried any wine yet b/c I'm frankly a bit afraid of doing so. My neuro said it would probably make me sleepy, and it lowers the threshhold for seizures, thus my fear of doing so. My husband is a wine collector, so this is a major lifestyle change for me. Some of my AA friends who no longer drink recommended that I always have a nonalcoholic beverage of my choice with me so I won't feel left out. I've tried it, and found I'm still having fun and lots of laughs with my friends.
I can't drive either, and resent having the privilege revoked, but I know that in CA you can regain your license at some point if you're on meds and seizure free for a period of time, and have a Dr's authorization. I'm fortunate to live in a major city where public transit is readily available, but I have to think twice if I want to run to Walgreen's or the grocery store. It's an inconvenience, to say the least. On trips, I'm now the navigator and have learned to read maps which is something my husband always did, so I lost a privilege and gained a new skill I'd never been able to do successfully (always lost, always taking the wrong turn).
Best of luck to you.
Re: Re: Re: im totally lost!!!!!!!
Submitted by edel on Wed, 2006-08-09 - 10:21
hey me here again its nice to hear im not on my own. since the last time i emailed ive changed doctors and am happy with the results. he seems to b alot better at his job and at least acts sympathic that i need answers! at first when this all started i got to a very low point thinking that i was a freak but now im just dealing with it and realising im ok and maybe i do get seizures but i got a great family n friends to support me!this website has helped me 2 n people like you and im grateful 4 any advice. i too have to admit im having the odd drink but not to excess not where im drunk nice to talk to u keep me posted on how your doing ok!