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I'm so tired of this

Wed, 07/05/2006 - 13:08
Greetings! This is my first post on this site. There is a ton of good information out there and many people who relate to about every feeling that I have. However I still thought it good that I vent my situation and see if anyone could offer insight or advice that might help me at the moment. April 9th 2006 I feel out in the floor in front of my wife with a grand mal seizure. I had never had a seizure before and neither of us knew what was happening. My right arm started jerking and then it felt as thought I had been put in a vice. For a few seconds I could still hear my wife. She paniced and I could hear her screaming and begging me not to die. It may sounds silly to people who have had many seizures but we nad no idea what was happening. I came to with paramedics in my house telling me I had just suffered a seizure. I spent the next 2 weeks in and out of the hospital. Every time they would release me I had another seizure. My lovely wife was very supportive and kept me calm for the 2nd and 3rd seizures. They finally decided on 350 mg dose of dilantin taken once daily. I haven't had another seizure since. This morning the doctor called to inform that an enzyme in my liver is still elevated and slightly more so than the test they did last month. Also my dilantin level is low. I have a doctors appointment for July 17th. I'm scared about what is happening with my liver. I am also worried about my med levels. For the two weeks that I spent in the hospital there was never a dianosis made. When I see my family doctor he only talks about what my meds are doing to me. I would like to know what is going on with me. I don't know how much fear is normal for an adult who recently started having seizures but I live each day terrified of my next seizure. Any slight muscle spasm or knee twitch cause panic that I feel thru my whole body. It takes me a while to get my heatrate back down. The worst part is I cannot get the sound of my wife's voice being scared to death out of my head. I keep hearing her begging me to wake up and not to leave her. I think about it all day long and feel so guilty for scaring her. It really really depresses me. On an up note though.... Thru a blessing from God (more powerful than contraceptives) my wife and I conceived our first child in between my first two visits to the hospital. She said as she stood by me in the ER she asked God why she didn't have a baby yet...fearing that the worst might happen. Now I am expecting a son or daughter Jan 4th. I would like to know some closure to all this before I start my second life as a parent. If ya read all this thanks for listening. Heath

Comments

Re: Re: Re: Re: Re: I'm so tired of this

Submitted by mommy2kyra on Tue, 2006-07-18 - 13:55
Hi again, I'm glad to hear that you sat down and discussed your file in great detail, so that you're both looking at the same thing. I can understand and relate to your feelings and resistance to accept the idea of epilepsy. Mental health is most definitely affected by these things...it's stressful! I'm a little confused by a few of the things that you said, and concerned. I want to be sure that I'm understanding you. How exactly did your doctor explain that you're having seizures, but that you don't have epilepsy? True, there are a lot of things that can cause seizures. BUT, you have had a lot of tests. 2 MRI's, blood tests, and I would assume eeg. The eeg is one of the most helpful when first diagnosing this condition. I hope that you are able to get to a neurologist soon. Best of luck to you! Keep us posted on how you are. Heather :)

Re: Re: Re: Re: Re: Re: I'm so tired of this

Submitted by Heathallen on Tue, 2006-07-18 - 14:48
I should have been more clear, my apologies. I had an eeg done while I was hospitalized in April. The neurology staff said they saw some activity but nothing that suggested that I have epilepsy. Also I've never had any head trauma or anything else that would explain why I had seizures.

Re: Re: Re: Re: Re: Re: Re: I'm so tired of this

Submitted by gretchen1 on Tue, 2006-07-18 - 21:22
Okkwell oka I em aliiiiiddle bit PI MAHYBE. I think dat I em ok now mebbe. Ok ummmm...what is an egg????? I never gots one a those I meen I gets them to eet but ummmmmmmmmmmmm I don't get tham put in my brain and I well I wander do you help if egg is put inna a brainnnnnnnnnn. I am sort a missed up on eggs and I wanna no. Hell I furget other stuffs I wanna say um oh ok ummm oh hell furgit it I am OK I FEEL OK I EM OKKKKKkkkkkkkkkk but oh I amenber did you say asse-tejce"mmmebbe?Well see you donnaa HAVEOT GET that i do sssssssometimes and some times I do nto soooooooooooooooooooooooooooooooooo I meen ...I furgotted. I mmmmiiiiiiiight read you agin I hink mebbe I em a liddle biiiiiiiiiiit aaaffer a sz but NON I EM Not two ever. I em glad you like the docter but I do not goet it what you say bout Dilantsos can you say it difeeeeeeerehttt fo9r me I read and reed it and I can not under. I aaaaaem loistenign to operat poooooooooop opera and I love i do yu do that:; I EM VARY MAD BOUT A THING BUT NOT YU OR P0E0OEM HERE AND DAT IS THE WHY MY WR8T8HG HAS S0ECESS THAT IS ALL I HAVE BRaOMS/ Gretchen

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