Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

ice pick headaches and seizures

Sun, 07/28/2013 - 22:14
I started having these extremely sharp pains in my head as if I was being stabbed. I was concerned at the time because the were starting to be more painful and more frequent over several weeks and I all I could think of was that I might have a blood clot in the brain. I eventually had several grand-mal seizures back-to-back that hospitalized me and I have no memory of half that day. After testing by my neuro. (CT scan, MRI, Eeg, act.) I was diagnosed with epilepsy. I was on Dilantin for about 2 years that kept everything under control except abscent seizures and bad balance issues. My neuro now has me on keppra (750 mg, twice a day) to help control my balance problems because it was getting out of control, some people even asked if I was drunk while I was at work. Now these ice pick headaches are occurring again I eventually had a small seizure which I blacked out and had memory loss. I really don,t have any warning signs that I am going to have a seizure other than these painful stabs in my head, once I start having them frequently I will have the calm before the storm cliche. I won't have any for 2-3 days and they will hit me with a vengeance for a day or 2 then I will have seizure. From what I have read these ice pick headaches are not associated with epilepsy at all but they are my extremely painful sign that I will be having a seizure soon. Every time I have them a seizure follows once they are very frequent. I don't get these headaches except when I start this 2-3 week cycle that ends up in a seizure. My question is there anybody else experiencing these icepick headaches like me that leads up to seizures or know of any good articlesto follow up on this matter? Thanks, Derrick

Comments

I've done some studies on Ice

Submitted by Anonymous on Wed, 2014-04-23 - 08:25
I've done some studies on Ice Pick headaches and I believe they are commonly referred to as Cluster Headaches. They are the worst form of headaches a person can receive.It affects men 3 times more than females, and females who receive it say it is worst than child birth.Try Reading this article, http://brisbanemigraine.com.au/migraine-headache/as it gives good information on signs and symptoms of migraines and cluster headache (Ice Pick headaches) 

I have the same pain mine can

Submitted by ave_tylr91 on Thu, 2017-07-20 - 23:45
I have the same pain mine can last a full week. Been having seizures as well. I tried to express this to my doc but I keep getting told that they may not have anything to do with my seizures. I never had this type of headache until my first seizure in may of this year. Had one at one this ice pick pain that lasted 30 mins. All I want is some clear answers as to why this is happening

I do yes. They told me I did

Submitted by Godsannointeddaughter on Fri, 2018-03-09 - 20:41
I do yes. They told me I did not have epilepsy after having siezures and being on meds for 3 years. The siezures just stopped and now almost 3 years later they have started up again. I can not work and can not get assistance for care. 

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.