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I need a shoulder...
Wed, 09/13/2006 - 16:14Ended up in the ER again. Ongoing seizures. About an hour and a half this time. Can't drive, can't drink. I'm afraid it's gonna happen again...luckily, my friend was over when it happened, cause I couldn't walk, talk, or anything the whole time. Had to get an ambulance... This sucks.
Does everyone else have a fast heart rate and hyperventilation when they have simple partials???
:-(
Sam
Comments
Re: I need a shoulder...
Submitted by kjd on Sat, 2006-09-16 - 11:34
Hey Sam-
Been away from computer last couple of days. Here is a BIG HUG from me to you! I have lost track of how many times I have been in the ER with my simple partials. Mine start out the same way as yours every time. Complete autosensory- Get dizzy, heart rate and breath rate takes off 90 miles an hour, feel sick to my stomach then followed by secondary Todds paralysis. I lose all movement on my right side and all of my speech for about 4-6 hours after my seizures. Sometimes my speech stutters for up to a week after a seizure. Until my seizures were diagnosed we thought I was having strokes. Can't drink anymore ( I miss my margaritas!) and no caffeine at all (I was a coffee nut and lack of sleep triggers my seizures). Luckily I have kept my license in my state because I have never lost consciousness due to my seizures. I don't drive long distances and I won't drive at night anymore. Most embarrassing was when I had a seizure at work. Everyone looked at me like I was a monster. I couldn't talk or move
and was trying to get my boss to call my husband. Anyway, I definitely understand how you feel. Wish I had checked threads earlier. Am still sending a big hug and a prayer your way!
Kelly
Re: Re: I need a shoulder...
Submitted by ragin6 on Sat, 2006-09-16 - 22:29
Hey Sam,
I know what your going through. Waking up in the middle of the night with your heart racing is very scary. Sometimes I would be having dinner and all of the sudden my heart would start racing for know reason. I wouldn't be thinking about anything, nothing startled me, nothing wierd happened, everthings normal, but why I asked! For many years doctor after doctor told me they were panic attacks even though sometimes I would go into either a complex partial or second generalized seizure afterwards. It wasn't until I had a video eeg done that confirmed that these rapid heartbeats were in fact simple partial seizures. My new doctor added Topamax to my Lamictal which has so far helped a lot. Also knowing what the problem is has put my mind at ease. I knew it wasn't anxiety, I was scared though that they may have been missing something more serious. Hang in there and if you think your not getting the right treatment switch doctors.
Re: Re: I need a shoulder...
Submitted by groovyjoker on Fri, 2006-09-15 - 17:18
Hey Sam, More hugs. I started my seizures when I was an infant. Today I am 37. While I gained control of them a few years ago, for over 30 years I had simple partial seizures followed by 3-5 generalized every single week. I was eventually a candidate for brain surgery until I found the right medication cocktail. I also had partial complex seizures. Boy, those were interesting. Lots of hallucinations. Sam, hang in there. Keep trying new stuff. I tried the Vagal nerve stimulator. Have you? I hear it works for many folks. That's what I did. Try new medications, new dosages, all the time. Eventually - don't let them use the word "chronic" on ya.