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Epilepsy, dating, and thoughts of having children

Tue, 04/03/2007 - 21:45
Hi everyone, I'm a 38 yo single female epilepsy patient in Oregon. Aside from the fact that I've suffered from epilepsy for about 18 years, I lead a relatively normal life. I'm in veterinary school, suffer simple partial (continua?) psychic seizures that cause cognitive deficits, and also suffer from the typical psychosocial issues many patients with epilepsy have problems with. I've always wanted to have marriage and family if I met the right guy. As time has passed, I've matured, gotten better at relationships, learned a ton about epilepsy and how it affects me, and watched my symptoms become gradually worse and more persistent, albeit milder than many people. I worry about successfully practicing medicine, a bright future assuming I maintain the cognitive function I need to do so. I've watched my cognitive problems become worse, as I said. Still, I'm highly functional, and no one else can tell that I have a "buzz" or feel a little confused a lot of the time. I'm completely able to understand concepts and problem solve, but I'm a little slow on the uptake. I'm somehow, miraculously, able to "work through it" almost all of the time, and school has only set me back a couple times due to my epilepsy when the stress and sleep deprivation caught up with my brain, so to speak, during test taking times. I've started thinking about dating again. I had a breakup about 2 years ago. He wasn't supportive of my career, and had a negative attitude about epilepsy and having kids, which I'd never considered before. My mother is also epileptic, has always been well controlled, and she hasn't had the problems I have had with refractory simple partials. I've always dreamt of having a family, and I worry that men I date will have the same attitude. There's also increasing evidence that offspring of women with epilepsy have a much greater risk of cognitive impairment, which causes me to questions the ethics of my having my own children, knowing what I do about my own condition and the risks to a child, even if the pregnancy and birth go fine. This whole issue hugely impacts my "dating strategy". I've always made it clear that I'd like to meet someone who'd like to have a family, and now...??? Anyway, I wonder if there are others out there who struggle with some of these issues. How have you coped? What are your opinions about what I've written? Thanks for reading my vent..I hope this is a good place for it! Best, Lil

Comments

Re: Re: Epilepsy, dating, and thoughts of having children

Submitted by liliansabina on Thu, 2007-04-05 - 21:44
Gina, you told it like it is, for sure. Thanks, and I know you're right- and I knew enough to leave the B***ard...still it left me with a little doubt. The child thing is really kindof devastating for me- I've assumed my entire life that it would happen, and now I'm facing the reality that it might not, or maybe *should* not, considering what I know about heritability. Still, you see so many people who are extremely unhealthy, ignorant, etc...having kids, and I think "and WHY shouldn't I feel worthy to have one???" because here I am well educated, informed and aware, lead a healthy lifestyle, and kind to others...doubting myself. Kindof amazing now that I actually typed it. Of course, I'd also be open to adopting, but I've always felt it not the same. Maybe I'll have a paradigm shift. Of course, it's not a "primary" concern in my life right now- first I have to finish school, and regain a "life" (social, love, hobbies, etc...). It's good to meet you, Lil

Re: Epilepsy, dating, and thoughts of having children

Submitted by Jersey on Thu, 2007-04-05 - 13:51
There are guys out there that understand. I've been with my boyfriend for over 2 and a half years -- he's 27, I'm 24. He keeps me so positive. He's sat in the ER numerous times with me. He's driving me places until I get my license back in September. We're going to be building a house in a year or so in north carolina. We talk about kids. True love is taking someone as they are-- the good, the bad and the really bad-- and I wouldn't settle for anything but. Sometimes I get nervous about having kids-- but my mom is perfectly healthy yet I have epilepsy, my brother has Berger's disease and my sister is chronically ill from being born prematurely. All woman worry about their future children.

Re: Re: Epilepsy, dating, and thoughts of having children

Submitted by liliansabina on Thu, 2007-04-05 - 21:49
Hey Jersey- Thanks for writing. You're BF sounds like a catch! Good for you, and hang in there until you get your license back! Pesky seizures... I hear your thing about having kids- see, my mom has epilepsy, and is on 3 drugs (the same ones for 40 yrs!), and has NEVER had problems with being refractory, or cognitive issues, or the brain buzz that I have. To boot- she had 3 other healthy kids. So who really knows...my doctor doesn't seem all too concerned, and he specializes in women, epilepsy, and pregnancy outcomes. I guess I worry more about long term issues that can develop as a child grows, which is what happened with me. Funny things, genes. Thanks for writing, Lil

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