Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Can someone tell me how to live with Undiagnosed seizures?

Sat, 02/26/2011 - 16:40
People have told me that it can take years to be diagnosed and I am positive I am having seizures. Because nobody can see them they write me off, doctors included. They think I am crazy or making it up, but I know I am not. So how do I live? I try not to drive for fear of something bad happening, but my parents think I am lazy. They get mad if I ask them to drive me somewhere. They no longer take me horse back riding, so do I just give that up for years? I have tried ordering groceries online as I am afraid to drive to the store, but it is too expensive and I don't have a job, which is another issue. How do I hold down a job? What if I have a seizure at work? In May of 2010 I had to drop out of college due to a seizure. How do I go back? When I was there I would have almost daily seizure like episodes. Buses would be okay except that the closest stop is a 30min walk away, up an down two hills, walking right next to the road. When I do walk I am terrified that a car is going to hit me, not to mention that that is a long walk, especially with bags of groceries probably in the rain and cold. The worst part is that my GP doesn't believe me and not many doctors around here take my insurance, so I am having a hard time getting a referral. Pretty much all I can do is sit home and wait for things to get worse because I am sure they will. Maybe that would be better because then people couldn't ignore me. What would you do? What did you do?

Comments

Seizures

Submitted by Shelly8471 on Fri, 2017-11-10 - 01:34
Some people have seizures which definitely are made aware by anyone who witnesses one, but some seizures are simple or complex...I was in the military and had strange sensations that could not be explained...I was lucky enough that co workers and family witnessed these events...I could not give my doctor a reason but that I felt funny and not right...They ran tests...and a electrocardiogram sleep deprived stated I was in fact not crazy...and was having seizures...I was unfortunately discharged from the military for this reason...I went on to have 3 or more seizures after I was discharged from the military... it did not report it cause I thought they might think I was crazy...At 34 years of age I had a simple partial seizure unlike what I was discharged from the military for...they discharged me with a complex partial seizure disorder...I was suppose to follow up but didn't cause I moved to another state and brushed it off...I am now having episodes Yet again that I can't explain...It could be one of these seizures...you are having...simple partial or complex partial seizures...I have made an appointment with my doctor cause I need an answer...So don't give up...There are truly doctor's out there who will listen...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.