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Caffeine a No-No?

Fri, 07/21/2006 - 14:57

Topic: Living With Epilepsy - Adults

The more I ask folks with "E" about their reactions to caffeine (in far more foods than coffee and tea), the more I realize I'm not alone. For as great as a cup of that brown stuff tastes, it sure can screw up my neuro system. Indeed, in most cases when I have a seizure or get "auras" -- I've had coffee, or an extensive amount of it. Oh, maybe that wake-me-up cup in the morning isn't that bad, but those pleasure-filled cups can become addictive, can't they? Let's hear how you and Starbucks get along! --George

Comments

I gave up caffeine about a

Submitted by uhvfre717 on Fri, 2019-01-04 - 20:25

I gave up caffeine about a year ago but will occasionally have a soda or small cup of coffee here and there. I had two episodes this week that were more intense than usual and both of those days I had consumed caffeine. The first time was a coke and the second was a 6 ounce cup of coffee. Bad move >.<

Re: Caffeine a No-No?

Submitted by day_me_in on Thu, 2008-07-24 - 18:00

I take two No Doz (400 mg. caffeine total) first thing in the morning then I drink one cup of coffee. I drink green tea during the day, along with water.

The Neuro never mentioned caffeine as a *no-no*. Alcohol was about it.

And, since Excedrine Migraine has caffeine in it and caffeine is mentioned as an aid to migraines, I can't see how it can be bad for your brain.

Since I am on Topamax, I have not had a migraine in months, knock on wood.

Bottomline? I love caffeine and see no reason not to eat it, drink it or ingest it in any way. As long as you don't have negative/bad side effects, etc. If you feel bad, don't. Seems simple.

I take two No Doz (400 mg. caffeine total) first thing in the morning then I drink one cup of coffee. I drink green tea during the day, along with water.

The Neuro never mentioned caffeine as a *no-no*. Alcohol was about it.

And, since Excedrine Migraine has caffeine in it and caffeine is mentioned as an aid to migraines, I can't see how it can be bad for your brain.

Since I am on Topamax, I have not had a migraine in months, knock on wood.

Bottomline? I love caffeine and see no reason not to eat it, drink it or ingest it in any way. As long as you don't have negative/bad side effects, etc. If you feel bad, don't. Seems simple.

Re: Caffeine a No-No?

Submitted by spazyb33 on Sat, 2008-07-12 - 15:06

I am sure I am the only one that will say this but my 4yr old with primary generalized epilepsy does better with caffeine. If he is having a really bad day 30-50 patite mal's and 2-3 grand mal's I go buy a mocha from starbucks and the change is almost instant! I was hoping to find someone like that but after reading a few I see he might be the only one. Any advice he has failed all meds and has a VNS that works about half the time.

Thanks

wondering mother

Thanks

wondering mother

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