Trying for normalcy in a crazay, crazay world...lol

Re: Trying for normalcy in a crazay, crazay world...lol

Submitted by 3Hours2Live on Sat, 2012-06-16 - 01:38

Hi Graci, My username, 3 hours to live, was given to me by an ER's interpretation of my CT-scan. I didn't know it at the time, but the results of my secondarily generalized tonic-clonic seizure ended up limiting me to only possibly roasting unstuffed turkeys weighing less than 8 pounds before death would have precluded not burning the bird, and everything else nearby. Good thing it wasn't Thanksgiving Day. Some other people with epilepsy in similar situations have even been prosecuted for reckless endangerment of others, when an "abstract" legally reasonable & responsible person should have known the consequences of what might go wrong. "Reasonable Accommodation" can avoid many of the problems & dangers involving the seizures of epilepsy, but this society is often not reasonable with much involving epilepsy. Your sentence "I could have a seizure while crossing an intersection and be run over by a bus!" was posed to me recently by Adult Protective Services on behest of my then doctor, whom I filed an ADA complaint including issues of contentions on whether or not I could safely make the less than a mile walk to home from the clinic, or if I endangered my health by refusing ambulance services to the nearest hospital over a painless migraine, which the clinic alleged justified their right to deny future medical services. To the other extreme, my latest doctor refused to extend my Keppra precription due to his claimed inexpertise with epilepsy, while he then demanded that I meet an appointment to a physician's assistant 18 miles distant before any further medical considerations from him (he said his "friends" could make it on the bus in twenty minutes, but the Google Trip Planner for the bus service listed the round trip as more than 35 miles long, with 3 miles of walking, and taking three hours in time). The physicians's assistant then changed the time to a time incompatible with the bus service without a six hour wait at a distant terminal in the high 90-degree plus weather. My concerns for such extremes in obtaining services were abruptly dismissed as a display of no genuine desire & need for medical services. All aspects of "major life activities", as defined under the Americans with Disabilities Acts (ADA), are subjected to discriminatory prejudice resulting in unnecessary restrictions, and, subjected to the flip side of denial of any accommodations through the denial of any knowledge of such requirements. The flip-flop between these two sets of issues being involved, will even get giggles from Supreme Court justices, so, any dreams of reasonableness will often be taken as a mere joke at all levels, resulting in anything from mere laughter, to involuntary confinement for the epileptic person's own protection, and the protection of society from the dangers of individuals with epilepsy. Tadzio