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son,newly diagnosed
Mon, 03/21/2005 - 07:55Topic: Family & Friends
Hi, My 10 year old son was at school last week, on playground and had a grand mal seizure. He never has had any illness or been sick in any way. However, my 13 year old son started in second grade with the petite mal seizures, was on medicine for a couple of years and went off. Then November of 2003 had a grand mal seizure in his sleep. So I have 2 of my 3 sons on Depakote ER. My 10 year old was hospitialized over night. Had EEG done. His pediatric neurologist said it was strikingly abnormal. (This did not comfort me at all) Anyway, Started his meds and within 48 hours he had another grand mal. Now he is on 750mg of the depokote er. Seems to be working. No more seizures. Ok, now that I feel my life has been turned upside down. I am just wondering, any other parents that have seen there children go through these,how do you stay calm? What do you do? Do you call 911? Then when they show up, they want to take them to the ER. I have all these questions and forgot to ask the Dr. My mind has not been all together since. I am just looking for someone to talk to about these. Oh and the other thing, My husband or I dont know of anyone in our families with history of seizures.
RE: RE: RE: son,newly diagnosed
Submitted by k.shank on Mon, 2005-03-21 - 07:55
Hi again,
His seizures sound much worse than Amanda's. And if she would have needed oxygen or turned blue I definitely would do the same. I think as parents we have to do what we feel comfortable with and I would rather be safe than sorry. I do hope in our cases that this does get controled and easier for us as parents to understand and deal with. I think we suffer more than the kids because we see it and they don't. The improvements in the medicines is far better now than years before, so hopefully this will help control their seizures and at least give us as parents a little piece of mind. I know that I still have a long way to go to get there too. This is very difficult to have happen and to deal with, but this site has really helped with all the information and just knowing that I am not alone when I feel scared or helpless.
Good Luck and let me know how it goes for you and yours.
Kristy
Hi again,
His seizures sound much worse than Amanda's. And if she would have needed oxygen or turned blue I definitely would do the same. I think as parents we have to do what we feel comfortable with and I would rather be safe than sorry. I do hope in our cases that this does get controled and easier for us as parents to understand and deal with. I think we suffer more than the kids because we see it and they don't. The improvements in the medicines is far better now than years before, so hopefully this will help control their seizures and at least give us as parents a little piece of mind. I know that I still have a long way to go to get there too. This is very difficult to have happen and to deal with, but this site has really helped with all the information and just knowing that I am not alone when I feel scared or helpless.
Good Luck and let me know how it goes for you and yours.
Kristy