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PLEASE HELP US IM RUNNING OUT OF HOPES!

Tue, 03/29/2005 - 09:30

WELL I DONT KNOW WHERE TO START BUT HERE I GO I HAVE A SON THAT IS 12 NOW BUT AT AGE 3MONTHS PR SO WE STARTED HAVING SEZURES THAT SAID HE WAS APRATING ON MILK WE WAS SENT TO MEMPHIS SAID HE PROBALY WOULN'T HAVE ANYMORE THEN THEY SENT US HOME WEEKS LATER HE STARTED AGIN BACK TO LEBONEUR WE  WENT THIS TIME WE CAME HOME ON PHENOBARBITAL...WE STAYED ON THIS TILL HE STARTED SCHOOL THEN WENT ON TEGRETOL..WHICH WE ARE CURRENTLY TAKING NOW..HE TAKES 400G.>>MORING 200G LUNCH>AND 400G NITE FOR THE FIRST TIME WE SEEN A BAD ONE HE STARED AROUND ROOM SLOBERING AND HIS EYES ROLLING..EYES OPEN BUT NO RESPONSIVE..CALLED ABULANCE WE WENT THEY SAID THAT WAS NORMAL BUT NOT TO US..WE SEE OR UNTIL THEN HAD ONLY SEEN THESE OR SMALL ONES WE CALLL THEM COMPRE TO THE THING HE HAD THE OTHER DAY..AND THEN ONE THE OTHER NITE.THE ONES WE ARE USE TO IS THE ONES WHERE HE SQWENCHES EYES AND FACE AND TURNS RED IN FACE AND MOVES HIS HANDS OR THEY GET TITE AND SOMETIMES HE WILL NEARLY THROW UP BUT DONT ALTHOUGH HE WILL SOMETIMES..WE ARE NEW TO THE OTHER 2 BUT IM ALITTLE WORRIED BECAUSE HES BEEN HAVING THEM LIKE EVERYOTHER WEEK AND HE SOMETIMES WILL HAVE SEVERAL..HOURS APART FOR LIKE A DAY THEN WONT HAVE ANY FOR WEEKS AGIN..BUT STILL ..I WORRY BECAUSE YALL ARE>>>>>>>>GONNA THINK ME AND MY HUSBAND ARE CRAZY BUT WE KEEP ALOG OF HIS SEZURES WHEN WHERE WHAT TIME AND WHAT HE DID WHEN HE HAD IT..AND THE LAST FEW MONTHS ALOT OF THEM ARE WHEN A COLD FRONT COMES THREW IM SERIOUS I THINK THE COLD FRONTS MAKE HIM HAVE THEM OR WEATHER IS WHAT I MEAN....OR IT MAKES THEM WORSE OR SOMETHING LIKE THAT..HES WEIGH 170 AND 12 YRS OLD HE DONT HAVE MANY FREINDS WE ARE LOST AND I CRY ALOTI WANT HIM TO BE A BIG BOY ITS HARD TO LET GO YA KNOW THEY MAKE FUN OF HIM AND IT MAKES ME SO MAD..SHOULD I BE LIKE THIS OR AM I TAKING IT TO FAR..HE MY BABY AND WILL ALWAYS BE ..MAYBE THE MEDICINE AINT WORKING LIKE IT SHOULD..HE HAS ARUAS HE KNOWS THAT HE IS GONNA HAVE ONE MOST OF TIME..WHEN HE WAS LITTLE HE USE TO JUST THROW UP FOR NO REASON I THINK HE WAS HAVING SOME KIND THEN TO >>>>PLEASE IS YOU CAN HELP ME LET ME KNOW..

Comments

RE: PLEASE HELP US IM RUNNING OUT OF HOPES!

Submitted by welovejane on Mon, 2005-03-28 - 15:25
The only thing I can tell you - as I am not a medical professional, is that it took my husband 35 years to find a neurologist who told him why he continued to have seizures - even though he was medicated (he was a baby when he started having them, too), and now, this neurologist is suggesting surgery.  My advice to you is to continue to look for a neurologist for your boy who can give you answers and help.  Not all doctors are the same.  I wish you a lot of luck. 

RE: PLEASE HELP US IM RUNNING OUT OF HOPES!

Submitted by angel_lts on Tue, 2005-03-29 - 09:29
Keep track of the seizures and see what is prevoking them. Check his diet and get him on good fats and low carbs you will see a change immedicately. Also check out my site for different natural things to do for him too in links.http://health.groups.yahoo.com/group/EpilepsyApproach/Lisa

RE: PLEASE HELP US IM RUNNING OUT OF HOPES!

Submitted by dwrouse on Tue, 2005-03-29 - 09:30

Hi Kimmie, I from the Memphis are also. I have a four year old son that stated having seizures about a year ago( Gran mal then Atonic droping seizuries) My wife and I have been thru both of the neuro groups in Memphis not very Happy with either  group.. We have taken him to Little Rock also.. still no answer's I know it's hard but you have to hang in there for your son that's what's all about,,, These post are the greatest thing I've found.. get more info from the post here than the doctors,, D.Rouse      dwrouse@fedex.com

Hi Kimmie, I from the Memphis are also. I have a four year old son that stated having seizures about a year ago( Gran mal then Atonic droping seizuries) My wife and I have been thru both of the neuro groups in Memphis not very Happy with either  group.. We have taken him to Little Rock also.. still no answer's I know it's hard but you have to hang in there for your son that's what's all about,,, These post are the greatest thing I've found.. get more info from the post here than the doctors,, D.Rouse      dwrouse@fedex.com

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