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Non-Medication of Childhood Absence Seizures

Thu, 10/21/2004 - 18:39
Hello All from Sydney, Australia.Our 8 year old son Matthew was diagnosed earlier this week with Absence Seizures.Given the potential side effects of medicating and that at this stage anyway Mattie's schooling and other activities don't seem to be being impacted meaningfully by his seizures, we've decided in conjunction with our Pediatrician not to medicate for now.I'd value any advice or tips or personal insights that anyone who has been in a similar position or has decided on this route might offer.Thanks, Des

Comments

RE: RE: Non-Medication of Childhood Absence Seizures

Submitted by Clunk1234567 on Wed, 2004-09-22 - 18:41

I have no idea what it's like to be a parent of a child with epilepsy, only what it's like to be a child with epilepsy.

Mine was uncontrolled and untreated because of the era, and lack of knowledge and understanding.

 Having gone through all my adolescent years having absences without medication, i can say from personal experience that it distroyed my future. Every aspect of social life was affected, in and out of school, right up untill someone diagnosed the little bugger as an adult, and started me on the drug regime.  As most people who had epilepsy during their school years will tell you, have one seizure at school and you'll find out how wicked most kids can be.

Since then i have been through all the "first generation" drugs, and now i'm strolling through the "second generation" lot. I can say that not all the latter drugs put the brain in treacle, or slow the thought processes down.  Only decide against the drugs if the doctor decided the epilepsy is mild enough, and for no other reason. Once on the drug regime, i attained a PHD in computer programming. Because of the hell i went through at school, i have not had the confidence to get off the end of a broom and utilize it. My absences turned to complex partials, which, in turn, fractured my skull twice, and i lost the broom as well.

Every single one of us who still have epileptic seizures, also has a deep rooted desire to be free of them, and most will do anthing to achieve that, no mater what the cost.

I have no idea what it's like to be a parent of a child with epilepsy, only what it's like to be a child with epilepsy.

Mine was uncontrolled and untreated because of the era, and lack of knowledge and understanding.

 Having gone through all my adolescent years having absences without medication, i can say from personal experience that it distroyed my future. Every aspect of social life was affected, in and out of school, right up untill someone diagnosed the little bugger as an adult, and started me on the drug regime.  As most people who had epilepsy during their school years will tell you, have one seizure at school and you'll find out how wicked most kids can be.

Since then i have been through all the "first generation" drugs, and now i'm strolling through the "second generation" lot. I can say that not all the latter drugs put the brain in treacle, or slow the thought processes down.  Only decide against the drugs if the doctor decided the epilepsy is mild enough, and for no other reason. Once on the drug regime, i attained a PHD in computer programming. Because of the hell i went through at school, i have not had the confidence to get off the end of a broom and utilize it. My absences turned to complex partials, which, in turn, fractured my skull twice, and i lost the broom as well.

Every single one of us who still have epileptic seizures, also has a deep rooted desire to be free of them, and most will do anthing to achieve that, no mater what the cost.

RE: Non-Medication of Childhood Absence Seizures

Submitted by gregydj on Wed, 2004-10-20 - 06:20
Dear friend, I really feel for you when I saw what you wrote. Well, I would like to tell you that my girl friend just got cured last two months when we where told by our travel agent here in Egypt about some herbal treatment and we have to try it and I am happily tell you that she is a free as air now as the doctor confirmed that she is not having any trace of epilepsy again in her.If you would like to have the drugs, tell me so that I will give you the man contact email.Bye,Greg.gregrb232@yahoo.com

Re: RE: Non-Medication of Childhood Absence Seizures

Submitted by mommy_b1 on Sat, 2006-10-07 - 22:42
Could you send me the info. please? Our daughter is almost 6 and has Absence Seizures. Thanks!

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