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New Here...Have Questions regarding husbands epilepsy.

Mon, 09/07/2009 - 13:17

Hi my name is Lisa and I'm hoping someone out there can help me out with some questions regarding my husband epilepsy.

My husband had a grand maul seizure about two years ago and was then diagnosed with epilepsy. His is currently on medication and has not had any more seizures (thankfully) but he has these episodes (for a lack of a better word) where he can function normally as far as walking, driving and working around the house but the problem is with his speech. I will ask him a question and he understands me but the answer are a little off and he seems to struggle with finding the right words. And on a few occations the words are jibberish and I will ask him did you hear what you just said and most of the times he said yes he did hear it.

This isnt some thing that happens a lot in fact since the first seizure over the last two years Id say its happend maybe three times. The last time was this weekend and it was over about a day and a half period.

Is this normal? Has anyone else experienced this? Could it be his medication isnt strong enough?

I would appricate any help. I'm kind of freaking out about this and I dont have any real support as far as friends and family and I know no one else with epilepsy.  

 Thank you,

Lisa           

Comments

Re: New Here...Have Questions regarding husbands epilepsy.

Submitted by neilkevin on Mon, 2009-09-14 - 05:27

 

Hi friends,

I am new here I would like to share you something my husband has juvenile myoclonic epilepsy and his seizure symptoms include severe pain and pressure in his head,inability to regulate body temp,inability to breathe at times and severe age regression.is his diagnosis correct????

Please help to suggest ....


 

 

 

 


 

 

 

Hi friends,

I am new here I would like to share you something my husband has juvenile myoclonic epilepsy and his seizure symptoms include severe pain and pressure in his head,inability to regulate body temp,inability to breathe at times and severe age regression.is his diagnosis correct????

Please help to suggest ....


 

 

 

 


 

 

Re: New Here...Have Questions regarding husbands epilepsy.

Submitted by probell on Sun, 2009-11-08 - 13:45
I have had a few grand mals but also have had exactly the symptom that you describe on several occasions. For me it has only lasted 1-2 minutes. Each time I try to experiment to better understand which part of my brain is affected. I can not talk but I can walk normally. I was unable to navigate the menus on my mobile phone. I have not yet had a chance to try counting, writing on paper, typing, tasting food, or working a puzzle. If you ever have a chance to conduct those kind of experiments, I would be interested to know the results. I recently changed medications from levetiracetam to lamotrigine. Since that change I have not had such an episode as you describe, though it is too soon to know conclusively whether the lamotrigine has stopped that kind of episode for me. Good luck, talk to your doctor, and if you feel like it you're welcome to talk to me. ~Jonah jonah@jonahprobell.com

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