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My husband has sz. from a car accident in 1977

Mon, 07/12/2010 - 20:54
Hello. My husband had his first sz almost 5 years ago. He was in the hospital for 7 days. He does not remember clearly what happened two wks before and DAYS afterwards. He is on depekote 1250 mg a day. The doctors found that it was from an accident he had in 1977. He had hit his forehead on the steering wheel of his car and now has scar tissue. They said they could operate to remove this but it would only cause more scar tissue etc. He was clear up until November of 2009. He had another. I was not there for the first one but was for the last one. It was the middle of the night. Thank God I am a first responder at work as I did not panic. I just did what I had to do. Not that I wasen't freaked out because I surely was. I have been reading alot of the discussions on here and feel so much better that there are others out there that are going through the same thing we are. Some of those things are him not believing he has had a sz., feeling spacey, or as one guy said like he's walking through sand. Having docs that don't listen. Also he is very unsteady most of the time. He will stumble or wobble. Sunday he fell down some stairs and said it was because he was looking at pictures on the wall but I'm not sure if he's being totally honest. I have been reading alot of things that I find here to him and I think he is finally realizing that we are not kidding with him about this. He hasent believed that he ever had one. I even told him one time that I was going to tape him if it ever happened again. We laughed when I said it but then he said maybe thats a good idea. I really feel for him that he has the short term memory loss. This is a guy thats always been at the top of his game and it kills me that this frustrates him so bad. I think my question is (now that i have all of the other things off my chest) He said he has these times when he feels like he's kind of not there and doesn't feel like he's doing anything right. And he really can't do much. This can last anywhere from a couple of minutes to all day. We call them "Bad Days". The doc didn't really understand when he was trying to explain so he ordered a 24hr eeg which of course came up normal. Does anyone else experience this? I've been handling things pretty well but am at the end of my rope for answers. If anyone out there has these same feelings that he does or has family members that do please contact us. thank you all in advance and I am SO glad I stumbled on this sight, it has already helped us out even though this is the first time I am posting.

Comments

Re: My husband has sz. from a car accident in 1977

Submitted by shellylp on Tue, 2010-07-20 - 21:34
Thank you. He has an MRI at least once a year to keep track of the scar tissue. Has not hat cat scan.  I was in one of the chat rooms last night and everyone in there made me feel welcome and I was brought to tears because they were really listening. I couldn't even see the screen at one point lol. Our families do their best but they really don't get it. I don't blame them I didn't either untill we started living it. I have told a few friends about this sight. One of the girls sons has sz due to an injury in Iraq. I thought it would be helpful for all of them.

Re: My husband has sz. from a car accident in 1977

Submitted by L29 on Mon, 2010-07-19 - 22:35
First of all i am so so sorry that you all are going through this terrible ordeal and i can not even imagine what you all. Are going through and i think that for him it is hard for him to accept the fact that he has seizures all he want is a normal life and to be able to just live his life without having to deal with what he is dealing with. I will be praying for you all and i am so sorry that i could not help you more. God Bless You All!

Re: My husband has sz. from a car accident in 1977

Submitted by shellylp on Wed, 2010-07-21 - 21:05
Thank you so much for your kind words and for the prayers. Yes I think it is hard for him to accept. Some days he seems to deal with things and then others he's not so sure. But the great thing is finding this website with people that are going through the same thing.

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