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my child has epilepsy

Thu, 02/12/2009 - 11:19
My 6 year old son has just been diagnosed with bre, he had an eeg that showed abnormal results, the neurologist told me yesterday that its bre! I am devastated! I cant wrap my brain around this. We are scheduled for a 48 hour video eeg next week, can anyone inform me of what to expect when we are admitted to the hospital for this test? How will we be able to entertain a six year old confined to one room for 48 hours? I have never seen my son have a seizure, he wakes up many times throughout the night, and has a lot of issues getting back to sleep and this has been ever since he was an infant. Somebody please help me grasp this? I am so tired of hearing its okay its not a big deal, it'll be alright. This is my 6 year old having to deal with horrible things, this is a big deal! I have searched the internet and read a bunch of articles but they aren't helping me feel any better. Any suggestions? 

Comments

Re: my child has epilepsy

Submitted by seakats on Thu, 2009-02-12 - 19:34

Hi Kim!  I'm glad you found this website!  I wrote this for an adult going in for a video eeg that lasts a week but hopefully it will answer some questions about what it will be like.

A video eeg (or veeg) is important in a lot of ways for neuros.  I just had one in September and boy oh boy was it a treat!  Ugh...  I'll try to explain in a clear way.  The video eeg is the same equipment that they used for your initial eeg except that they use superglue to attach the electrodes to your head.  The wires are then fed into a box that will rest on your stomach/chest.  This box has a 'seizure button' that you need to press whenever you have an inkling that a seizure is coming on.  From there, there is a wire that feeds into the wall and transmits all the eeg data to a technician.  Also in the room is a camera for daytime and an infrared camera that captures movement for nightime.   These cameras are focused on your hospital bed (that is surrounded by cushions so you can't hurt yourself when you seize).

The reason for a video eeg is to capture what you are doing, how you are breathing, and what the progression of a seizure is.  Nurses will put an IV line in your son's arm in case a seizure starts and they need to stop it so be prepared that he'll have to face a needle.  Your doctor may have a list of things that he wants to do while you are seizing.  Mine wanted to try to get me to talk to him or follow him with my eyes.  A video eeg is a safe way to encourage seizures while in a controlled and medically prepared environment.  It also records the visual manifestation of the seizure for later discussion.   You are not allowed out of bed without a nurse present for safety reasons and staying in bed was not my normal routine.  If your son seizes, there is a seizure button that you need to press and the nurses will come running.  But know that while the nurses and doctors are there and asking you questions if and when you seize, back in the eeg room, the specialist is recording everything that is happening. 

Bring things that he likes to do in bed, like coloring sheets.  Have him go to the library with you and pick out special books that he gets to read only in the hospital with you.  Go to Wal-Mart and get those coloring kits that color different colors with the same pen.  Or an etch a sketch.  Don't bring electronics.  They are too easily misplaced and the specialist can't see what he's doing on the monitor.  Have him make a book about what it's like to be in the hospital.  First graders LOVE to make books and if he's in school, he can share it with his class.  Practice the hand jive or other hand clapping routine.  Nurses don't care if you make noise in your room.   As long as you're stuck in the room for a couple days, make sure you bring things to do.  I know how hard keeping a six year old boy still can be!

I know how you feel.  Your little boy is going through something that you can't control and you can't make all better.  And you feel awful because that's what good moms do.  Guess what?  Good moms are brave.  And it sounds like you're one heck of a good mom.  You did nothing to cause this and nothing you do can turn back the clock and keep it from happening.  Did you hear that?  You did nothing wrong!!!  God has his hand on your little boy, whether you can see it through the pain right now or not.  God is going to use those doctors, nurses, and your loving care to make sure that your son gets the medication and the help that he needs.   He is so lucky to have a strong, determined and loving mom like you to help him.  When he grows up, he will say, "Thank you" in so many ways that you will look back on this time in your life with pride that you and your son made it through.

Good luck, God bless, and feel free to post any time!

 

Hi Kim!  I'm glad you found this website!  I wrote this for an adult going in for a video eeg that lasts a week but hopefully it will answer some questions about what it will be like.

A video eeg (or veeg) is important in a lot of ways for neuros.  I just had one in September and boy oh boy was it a treat!  Ugh...  I'll try to explain in a clear way.  The video eeg is the same equipment that they used for your initial eeg except that they use superglue to attach the electrodes to your head.  The wires are then fed into a box that will rest on your stomach/chest.  This box has a 'seizure button' that you need to press whenever you have an inkling that a seizure is coming on.  From there, there is a wire that feeds into the wall and transmits all the eeg data to a technician.  Also in the room is a camera for daytime and an infrared camera that captures movement for nightime.   These cameras are focused on your hospital bed (that is surrounded by cushions so you can't hurt yourself when you seize).

The reason for a video eeg is to capture what you are doing, how you are breathing, and what the progression of a seizure is.  Nurses will put an IV line in your son's arm in case a seizure starts and they need to stop it so be prepared that he'll have to face a needle.  Your doctor may have a list of things that he wants to do while you are seizing.  Mine wanted to try to get me to talk to him or follow him with my eyes.  A video eeg is a safe way to encourage seizures while in a controlled and medically prepared environment.  It also records the visual manifestation of the seizure for later discussion.   You are not allowed out of bed without a nurse present for safety reasons and staying in bed was not my normal routine.  If your son seizes, there is a seizure button that you need to press and the nurses will come running.  But know that while the nurses and doctors are there and asking you questions if and when you seize, back in the eeg room, the specialist is recording everything that is happening. 

Bring things that he likes to do in bed, like coloring sheets.  Have him go to the library with you and pick out special books that he gets to read only in the hospital with you.  Go to Wal-Mart and get those coloring kits that color different colors with the same pen.  Or an etch a sketch.  Don't bring electronics.  They are too easily misplaced and the specialist can't see what he's doing on the monitor.  Have him make a book about what it's like to be in the hospital.  First graders LOVE to make books and if he's in school, he can share it with his class.  Practice the hand jive or other hand clapping routine.  Nurses don't care if you make noise in your room.   As long as you're stuck in the room for a couple days, make sure you bring things to do.  I know how hard keeping a six year old boy still can be!

I know how you feel.  Your little boy is going through something that you can't control and you can't make all better.  And you feel awful because that's what good moms do.  Guess what?  Good moms are brave.  And it sounds like you're one heck of a good mom.  You did nothing to cause this and nothing you do can turn back the clock and keep it from happening.  Did you hear that?  You did nothing wrong!!!  God has his hand on your little boy, whether you can see it through the pain right now or not.  God is going to use those doctors, nurses, and your loving care to make sure that your son gets the medication and the help that he needs.   He is so lucky to have a strong, determined and loving mom like you to help him.  When he grows up, he will say, "Thank you" in so many ways that you will look back on this time in your life with pride that you and your son made it through.

Good luck, God bless, and feel free to post any time!

 

I had an epileptic fit for

Submitted by amber_58c10c026e43e on Sat, 2017-11-18 - 08:52
I had an epileptic fit for the first time 5 years ago in the middle of supermarket on my birthday of all days, wasn't fun for my kids to see it, it still haunts, I've tried many anticonvulsants and had never been able to stop the seizures.  Surgery was not an option. I was still an epileptic patient, who have completely lose hope. As the problem is always embarrassing and disturbing. While surfing the internet one fateful day, I learned about  Doctor Lawson on the internet. I contacted him with some info and I ordered for the Herbal medication and used the medicine for 5 months, though hesitantly, considering the fact that I have done a lot of procedure. After which I went for medical test It worked! I've been seizure free, Over a year now, I have not show any symptoms of seizure and I believe I am cure. contact him +1 (979) 475-5130 or dr.lawson52@gmail.com

My daughter was diagnosed

Submitted by clara21 on Sat, 2017-11-18 - 09:16
My daughter was diagnosed with Epilepsy. The neurologist was very confident about the diagnosis based, my  Daughter had an EEG (no idea if it showed anything; we were tired and may have misunderstood what he said about that). MRI was negative for problems. For the past 4 months or so, I have seen weekly occurrences, making strange faces (this involved cheek twitching and lip quivering). We did not realize it could be a serious problem until she had an obvious seizure (simple partial) last week. What is troubling about my daughter condition is that we have seen many daytime seizures, and that recently the seizures seem to cluster together. No idea if there are seizures occurring at night. We were given a prescription for Kapra, but are still weighing the risk / rewards of giving the medication to a toddler.  After returning from the hospital, my daughter experienced a round a vomiting lasting from 3 AM to 11 AM, followed by additional vomiting the following morning at around 2 AM. Nothing sense then. She has not had an appetite, is drinking fine, and otherwise appears healthy. I read a lot of blogs where people who shared their testimonies kept mentioning  Anti-seizure Herbal medication. I searched for a website I just followed the email address of Doctor Lawson that was shared on these testimonies; I got lucky when I got a reply from Dr. Lawson. I followed his instruction, used Herbal Medicine  in less than 2 months, my daughter seizures reduced drastically. Within a period of 5 months, my daughter was cured. I went back to my neurologist, where my daughter checked up and marked epilepsy free. contact him +1 (979) 475-5130

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