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Lennox Gastaut
Sat, 03/05/2005 - 06:32Hello, I am new to this sight. I came here trying to find some help. I am a caretaker of a 16 year old girl who has lennox gastaut syndrome, is blind, and mentally retarded. The problem is that I don't know what I can do to keep her occupied. Her mother does not know what to do either. She basically just walks her around and continuously switches activities every couple of minutes. We do not know how to keep her attention at all. She cannot talk or see, but she can hear. The activities that her mother does with her are just walking her around, rocking her on the recliner, letting her play the piano, listening to music and books on tape, and eating. She gets bored with these within a few minutes and gets very aggravated if the activity is not changed. Does anyone have ANY ideas as to what we can do with this child? She seems to be just existing and we want her to have some purpose in her life.
Comments
RE: RE: RE: Lennox Gastaut
Submitted by AmyQ on Fri, 2005-03-04 - 10:50
RE: RE: RE: RE: Lennox Gastaut
Submitted by jessiprince on Fri, 2005-03-04 - 11:07
Hi Amy,
We are in Rockville, Md. I appreciate any info you can give me!
Thank You,
Jessi
Hi Amy,
We are in Rockville, Md. I appreciate any info you can give me!
Thank You,
Jessi
RE: RE: Lennox Gastaut
Submitted by jessiprince on Fri, 2005-03-04 - 07:47
Hi Marlene,
Your daughter sounds so much like my son ( 11, also with LGS). He is in a special needs school all day in a class with 9 students and 3 adults. We tried to get him a shadow several years ago and they wouldn't do it. How did you get your daughter her own teacher? I know that would make such a difference for Luke. I would also like to hear about any learning strategies that you have found that really work. Luke's teachers have tried many different strategies, as have we, with the learning and behavior, and we just haven't found anything that really works. Everyone is in agreement,however, that he does much better one-on-one. I appreciate any advice you can give me!
Thanks!
Jessi
Hi Marlene,
Your daughter sounds so much like my son ( 11, also with LGS). He is in a special needs school all day in a class with 9 students and 3 adults. We tried to get him a shadow several years ago and they wouldn't do it. How did you get your daughter her own teacher? I know that would make such a difference for Luke. I would also like to hear about any learning strategies that you have found that really work. Luke's teachers have tried many different strategies, as have we, with the learning and behavior, and we just haven't found anything that really works. Everyone is in agreement,however, that he does much better one-on-one. I appreciate any advice you can give me!
Thanks!
Jessi