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Its all changed

Tue, 01/25/2005 - 01:25
Fourteen and taking topamax. I don't think my family excepts me anymore. It seems that they think I've changed form the person I used to be in to this sick, dumb, fat child that they don't wan't. I don't think I'm these these thing but its like when they see me there looking at a total stranger. They don't want to meet the person they don't don't even want to get close. Its been at least 3 years sence I've been diognesed with epilepsy and they can't even stand to talk about it. They still think I can't remember my pills on my own reminding me every night intill I couldn't take everything and when they asked I burst in to tears, but they didn't know why. My mom amd dad think we should exercise as a family but right now im loosing weight without their after school walks.I know my mom thinks I'm fat, shes maid in clear in ways on more than one occasion. Im'm not sure if I can talk to my doctor about everything yet, but for now thanks for listening.

Comments

Re: Its all changed

Submitted by chinadoll on Sun, 2009-05-17 - 18:32

hi hun.

i know it is very hard, especially having epilepsy as a teen. i have had it since i was 4 years old, and my parents were always overprotective of me. but i wil guarantee you this:its not that your parents dont want you;they are just worrying about you a hell of a lot more. and its also natural for your mother to worry if you have remembered your meds properly.they are, after all, your parents, and wil always act so.

having epilepsy isnt the end of the world. yes, parents get overprotective and worry, esp around the time of a seizure, but its only because they care. but you must also show them that you are responsible with your meds, and maybe even tell them (before they ask), that you have taken all your meds for the day. this will put them at ease a bit more.but one thing is certain-all of you must learn to talk more about your seizures. i mean when you go to see your neurologist, you wil have to discuss things in detail with him/her about your seizures, so start practising at home.

i wouldnt worry so much about the weight issue-i had the same problem for a few years after spending a few weeks in hospital-i gained a fierce amount of weight, but lost it also in a couple of years. best thing to help is lots of exercise...

and remember-you are NOT insane. just different from some other people. you have epilepsy. you wil learn to llive with it.

hope this helps.

atb

Candice

hi hun.

i know it is very hard, especially having epilepsy as a teen. i have had it since i was 4 years old, and my parents were always overprotective of me. but i wil guarantee you this:its not that your parents dont want you;they are just worrying about you a hell of a lot more. and its also natural for your mother to worry if you have remembered your meds properly.they are, after all, your parents, and wil always act so.

having epilepsy isnt the end of the world. yes, parents get overprotective and worry, esp around the time of a seizure, but its only because they care. but you must also show them that you are responsible with your meds, and maybe even tell them (before they ask), that you have taken all your meds for the day. this will put them at ease a bit more.but one thing is certain-all of you must learn to talk more about your seizures. i mean when you go to see your neurologist, you wil have to discuss things in detail with him/her about your seizures, so start practising at home.

i wouldnt worry so much about the weight issue-i had the same problem for a few years after spending a few weeks in hospital-i gained a fierce amount of weight, but lost it also in a couple of years. best thing to help is lots of exercise...

and remember-you are NOT insane. just different from some other people. you have epilepsy. you wil learn to llive with it.

hope this helps.

atb

Candice

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