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I'm new
Mon, 05/04/2009 - 22:29Topic: Family & Friends
I would love to meet some ladies on here to talk with about epilepsy I was diagnosed in September 2008 at age 40 after having 2 in 4 years I'm not doing good I'm depressed from it I'm on topamax...my seizures are not well controlled either.
Comments
Re: I'm new
Submitted by srchtt3 on Mon, 2009-05-18 - 11:21
I live in Colorado. I'm honestly at wits end. I got all my paperwork for my disability claim the other day. Don't even know what to mark. I mean honestly! When I'm feeling fine, I can do alot of what they are asking, but when I'm not feeling well or when I have auras or a seizure, FORGET IT! I just don't even know how to fill it out. Like driving. My neurologist didn't make me turn mine in as long as I don't drive when I'm not well, I live in a small town. But I'm also not allowed to drive in BIG cities. So..... What do you put in the 'yes or no' boxes? There isn't a 'sometimes' option... =D
Re: I'm new
Submitted by david 59 on Tue, 2009-05-05 - 07:15
david59 hey truly...sorry....im a guy. but ,i feel for ya anyways...i wanna say that ther are support groups every month in louisville and also in owensboro, kentucky, if you live close enough. the ladies that run the show,epilepsy foundation of kentuckiana, are the best... just cant tell you how devoted and sincere they are! gimme a shout back if you need more info. in the meanwhile....believe that there are many ,many people that can try to relate with you,ok? i am on dilantin and keppra...but have been on many other stuff to remain functional since my 3 tcs 2 years ago. hope it gets better for you! david
Re: I'm new
Submitted by vlroy on Sat, 2009-05-16 - 23:34
sounds like you need to get statements from your doctor and neurologist. Then get yourself and attorney that handles disability cases.
It took me 2 yrs to get mine but I finally got it.
I am in Berlin,NH. I have had epilepsy my whole life. I can understand what everyone goes through. I finally met an epileptologist that could help me.
There is a hospital in Southern NH called Dartmouth Hitch-Cock Medical Center in a town Called Lebanon, NH. It is a short distance away fro Dartmouth College. It is a teaching hospital.
The epileptologist I have there is an associate professor of neurology. THe doctors there have an excellent bedside manner.
I have had all my surgeries there. The neurosurgeon that did my surgeries was Dr. David Roberts.
IF your not getting results at your local hospital tell your doctor you want a second opinion. Tell them you want to go there.
If you want more information on the hospital or the doctors. Call me or here is my email. vickieroy39@yahoo.com (I will send you my phone later if you want it)
sounds like you need to get statements from your doctor and neurologist. Then get yourself and attorney that handles disability cases.
It took me 2 yrs to get mine but I finally got it.
I am in Berlin,NH. I have had epilepsy my whole life. I can understand what everyone goes through. I finally met an epileptologist that could help me.
There is a hospital in Southern NH called Dartmouth Hitch-Cock Medical Center in a town Called Lebanon, NH. It is a short distance away fro Dartmouth College. It is a teaching hospital.
The epileptologist I have there is an associate professor of neurology. THe doctors there have an excellent bedside manner.
I have had all my surgeries there. The neurosurgeon that did my surgeries was Dr. David Roberts.
IF your not getting results at your local hospital tell your doctor you want a second opinion. Tell them you want to go there.
If you want more information on the hospital or the doctors. Call me or here is my email. vickieroy39@yahoo.com (I will send you my phone later if you want it)