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I feel like im living a nightmare alone!

Wed, 01/26/2005 - 02:53
My son austin ,3yrs,started having siezures about 2 months ago, and we have been through heck!!!! My whole family. Austin dosent see his dad anymore b/c of his drinking. austin was on topamax and ativan, both made the siezures worse, so we had to put him into childrens hospital to make dramatic med changes. He is on Depakote, knlonipin, keppra, and a dietary supplament. We are getting him off keppra b/c its making them worse. how many meds do we have to go through? Austin also had to be admitted b/c the doctor almost overdosed him on depakote. Has this happen to anyone. I feel like im the only person w/ a child who has siezures. I think i'm going crazy sometimes. plz reply. amy

Comments

RE: I feel like im living a nightmare alone!

Submitted by gentlewings on Sat, 2004-10-02 - 13:10

I'm really sorry to hear about Austin and his seizures,as I am at the treatment plan given.I would certainly listen to the advice given so far in this thread.I also would try posting in the child neuro forum upon Braintalk,as I would over in the EFA forum as well.I wish you and your son well.

 

 

I'm really sorry to hear about Austin and his seizures,as I am at the treatment plan given.I would certainly listen to the advice given so far in this thread.I also would try posting in the child neuro forum upon Braintalk,as I would over in the EFA forum as well.I wish you and your son well.

 

 

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