Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Husband with Seizures
Wed, 02/09/2005 - 17:08Does anyone else have a spouse with seizures?-My dh has Grand Mals probably 3 or 4 times a year-he will usually have 3 of them or so in a 36 hour period and then is out of it for just about a week later. He has had them since puberty and was put on all kinds of drugs,phenobarb,dilantin etc. -these just caused more seizures so his dad had him taken off all meds. He mostly gets them form lack of sleep or stress. He has the flu and was up all night and then he had one this morning-they are very upsetting to watch and not be able to do anything. It is also very scary because he wants to get up and go to the bathroom and always falls-sometimes hits his head. Does anyone else experience this?
Mary
Comments
RE: Husband with Seizures
Submitted by rodeoman on Wed, 2005-02-09 - 07:38
Hi Everyone. My husband was recently diagnosed with grand mal seizures due to a rodeo accident almost 20 yrs ago. I had absolutely no clue what was going on with him and we had been to the local hospital 6x in the last 5 weeks. The hospital finally admitted him this last time and called a neurogist in. They currently have him on Depakote, which he has taken before, but is having and has had problems with this med in the past. Basically that's what brought me to this site was to find alternative meds. Is anyone out here currently taking zonegran or neurontin?? We have a Dr's appt today and I'm going to run through these meds with his neurologist. I'm familiar with both of them, as I have taken them but for reasons other than sz. Any information as far as how the medicines have reacted with you, side effects, etc. would be extremely helpful. We live in SC and some of the groups we have found that will help with financial problems are share, oconee aid her e in oconee county, salvation army, and believe it or not the food stamp office has been extremely helpful as far as numbers and names of organizations that will help. That's one of the biggest problems I have with my husband is that he hates to ask anyone for help or let anyone know exactly how bad he is feeling, etc.
Thanx,
Nancy
Hi Everyone. My husband was recently diagnosed with grand mal seizures due to a rodeo accident almost 20 yrs ago. I had absolutely no clue what was going on with him and we had been to the local hospital 6x in the last 5 weeks. The hospital finally admitted him this last time and called a neurogist in. They currently have him on Depakote, which he has taken before, but is having and has had problems with this med in the past. Basically that's what brought me to this site was to find alternative meds. Is anyone out here currently taking zonegran or neurontin?? We have a Dr's appt today and I'm going to run through these meds with his neurologist. I'm familiar with both of them, as I have taken them but for reasons other than sz. Any information as far as how the medicines have reacted with you, side effects, etc. would be extremely helpful. We live in SC and some of the groups we have found that will help with financial problems are share, oconee aid her e in oconee county, salvation army, and believe it or not the food stamp office has been extremely helpful as far as numbers and names of organizations that will help. That's one of the biggest problems I have with my husband is that he hates to ask anyone for help or let anyone know exactly how bad he is feeling, etc.
Thanx,
Nancy
RE: Husband with Seizures
Submitted by faith4him on Tue, 2005-02-08 - 21:44
Mary, My husband has seizures and you're right, they are very upsetting to watch without being able to do anything. He has fallen so many times and hit the wall, fallen down steps, out of the shower, etc., sometimes he wets himself and several times he has taken meds without even knowing what he is doing. He has had more than 15 in a two day period. It is extremely frustrating and when you take them to the ER they just send you home. Not too long ago, they sent us home when he was seizing while getting into our vehicle....they know less about it than we do it seems sometimes. I have been dealing with this for almost 15 years and it get so aggrevating to deal with "professionals" that know less than you do. Hang in there...it doesn't get easier unless you find the right medication and that could take years. My hubby is ready to get off of all meds and just go with the flow....he did better off the meds than on them.Jen