Community Forum Archive
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Friend with Epilepsy
Fri, 03/24/2017 - 16:55Topic: Family & Friends
HI,
One of my best friends is an Epileptic. He got his first diagnosis about 5 years ago and has had issues on and off ever since. His life is a real struggle and lately he has been getting increasingly despondent and frustrated. He is 30 years old, and maintains a realatively active lifestyle when he can. However, the frequency of his seizures has been increasing to the point where he cant really leave his house that often. I'm very worried about him and his mental well being at this point. The biggest frustration to him has been the fact that he can't relate to anyone about his issues. His own family, his friends, even strangers are quick to offer tidbits of advice about his condition but no one seems to understand all the deep seeded fears, frustrations and pains of living with Epilepsy. I am trying to get him involved with communities like this online or in-person group meetings where he can maybe talk with people who understand him better. Does anyone have advice for this or have encountered something similar? I really appreciate any feedback, assistance, thoughts. Thank you very much.
Hi. I was diagnosed with
Submitted by markedw45 on Sat, 2017-04-01 - 21:47
Hi. I was diagnosed with idiopathic epilepsy 2 years ago. Since that time most of my family won't talk to me now. They have pretty much shunned me and left me to deal with this own my own. I have tonic-clonic seizures with no aura and 90% of them occur when I'm walking and I have received so many injuries from falling I can't keep count anymore. This last winter I walked outside to collect my thoughts, luckily I live in a warmer climate winter or I would have died. I had a seizure and was outside unconscious for around 6 hours. The only person who actual even cares about me lives around 2 hours from me but I owe him my life. But I know about the depression your friend feels it's even worse when you have been abandoned by your own family. Some days I wish I would just go ahead die and not have to keep suffering from this. I struggle to buy my medication and to even pick it up from the drug store. But I'm so lonely In this world now I've about lost hope in the goodness in others. That said I would love to exchange email addresses with your friend and see if we could help each other with our condition. If interested let me know.