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Feeling Helpless and Lost
Thu, 09/23/2004 - 16:44Comments
RE: RE: Feeling Helpless and Lost
Submitted by picnupthepcs on Thu, 2004-09-02 - 22:13
Dear ccs123,
I had been on Topamax for 11 months then finally I couldn't take it anymore. I thought I was loosing my mind I repeated myself all the time, couldn't remember from one min. to the next, and blurted out things I can't even say. The drug reaked havok on my life and in my families lives. I have also been on Tegratol RX for about 8 months now and it has helpped alot with the nocternal seizures but my Dr. just upped me to 800 mgs. now that I am off of the Topamax I have just started taking Keppra I guess we will see what happens. I still can't work do to the Memory damage from the Topamax, but my Dr. also says I may just be prone to memory loss no matter what drug I am taking. I am back to driving again, but wonder if you had a funny feeling from the Keppra. I have only beein taking it about a week now, but it seems like when i am in the car moving fast that my eyes can't adjust right and I zone out (so for this reason I don't drive). I feel like i'm not going anywhere, but what I see seems to be moving kind of like I am living in a slow movie.
I thought about surgery and spoke to my Dr. a little but am to scared to be cut open because I almost died when I was younger after having surgery.
Hope things work out for you. and the best of luck.
Dear ccs123,
I had been on Topamax for 11 months then finally I couldn't take it anymore. I thought I was loosing my mind I repeated myself all the time, couldn't remember from one min. to the next, and blurted out things I can't even say. The drug reaked havok on my life and in my families lives. I have also been on Tegratol RX for about 8 months now and it has helpped alot with the nocternal seizures but my Dr. just upped me to 800 mgs. now that I am off of the Topamax I have just started taking Keppra I guess we will see what happens. I still can't work do to the Memory damage from the Topamax, but my Dr. also says I may just be prone to memory loss no matter what drug I am taking. I am back to driving again, but wonder if you had a funny feeling from the Keppra. I have only beein taking it about a week now, but it seems like when i am in the car moving fast that my eyes can't adjust right and I zone out (so for this reason I don't drive). I feel like i'm not going anywhere, but what I see seems to be moving kind of like I am living in a slow movie.
I thought about surgery and spoke to my Dr. a little but am to scared to be cut open because I almost died when I was younger after having surgery.
Hope things work out for you. and the best of luck.
RE: Feeling Helpless and Lost
Submitted by ccs123 on Thu, 2004-09-02 - 07:38
Hi. I have frontal lobe seizures also and am the mother of three children-ages 10, 6, and 3. I'm here to say that I can sympathize with you. I know what you're going through. What type of medicine are you on? What were you on before? I'm seeing a new doctor who's taking me off of Keppra and starting me on Lamictal. I also take Dylantin. He says that after six months on this new med, he may condiser surgery if the med doesn't help stop the seizures. Surgery seems frightening, but as crazy as it sounds, it's okay with me if it will give me my life back and I can be "all of me" for my kids instead of the "part of me" that the seizures haven't zapped. And I'm also tired of the stigma that comes with being epileptic. My family is understanding, but some of my friends look at me like I'm crazy if I have a seizure or if I repeat things because I forgot what I said five minutes ago. I send you my best and hope things get better for you. Take care.