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Depakote
Tue, 08/10/2004 - 21:50Comments
RE: RE: Depakote
Submitted by ermeszter on Wed, 2004-08-04 - 22:15
Hi Robert,
You are almost right, that being to drugged is not good, but in my husband's case I am afraid of everything.
I watched him having this seizures, lasting 30, 40 or 50 minutes, his heartrate at 150 sometimes ( I was thinking he could have a heart attack every second), could not bread and asked for oxigen, going into status epilepticus being avare of every thing, talking to me during this time. After the paramedics gave him valium and ativan, the seizures still did not stop, and he was still conscious, until they knocked him out at the ER, in order to stop his seizures. After that they had to intubate him, because his breading slowed down to much, then he went to the ICU, was there for 3 or 4 days, got MRSA, then antibiotics, and this every time. So every time he has a seizure, I freak out, hoping it will not be to long. It is terrible frightening and a heart acking situation to watch somebody have a seizure like that.
Last year we were more at the hospitals and rehab centers then at home. So I became a fighter, and beleave me I had to fight, in every hospital and rehab center. Some place less some place more, in one place a doctor told me: "I wish my wife would fight for me like you fight for you husband."
So I am afraid of any medication change, and live with the being drugged a little. For now he is getting Depakote and Keppra, and thanks God there is no generic available for this 2 drugs. For now with the company I work, we have prescription coverage, and my husband is covered with me, that for now, what will be later, who knows, but thank you for the suggestion to call the drug companies, for a better price. I don't even know, how much this drugs cost, do you?
Katalin
Hi Robert,
You are almost right, that being to drugged is not good, but in my husband's case I am afraid of everything.
I watched him having this seizures, lasting 30, 40 or 50 minutes, his heartrate at 150 sometimes ( I was thinking he could have a heart attack every second), could not bread and asked for oxigen, going into status epilepticus being avare of every thing, talking to me during this time. After the paramedics gave him valium and ativan, the seizures still did not stop, and he was still conscious, until they knocked him out at the ER, in order to stop his seizures. After that they had to intubate him, because his breading slowed down to much, then he went to the ICU, was there for 3 or 4 days, got MRSA, then antibiotics, and this every time. So every time he has a seizure, I freak out, hoping it will not be to long. It is terrible frightening and a heart acking situation to watch somebody have a seizure like that.
Last year we were more at the hospitals and rehab centers then at home. So I became a fighter, and beleave me I had to fight, in every hospital and rehab center. Some place less some place more, in one place a doctor told me: "I wish my wife would fight for me like you fight for you husband."
So I am afraid of any medication change, and live with the being drugged a little. For now he is getting Depakote and Keppra, and thanks God there is no generic available for this 2 drugs. For now with the company I work, we have prescription coverage, and my husband is covered with me, that for now, what will be later, who knows, but thank you for the suggestion to call the drug companies, for a better price. I don't even know, how much this drugs cost, do you?
Katalin
RE: Depakote
Submitted by Tany on Sun, 2004-08-08 - 23:45
Hi
katalin cristofaro This is Tany From Atlanta and I have Grandmals i used to take the pills that your husband took the daltin that you said it was not that to good they change in to tekital and it was not good and again they change in to daltin but it did not work and and now i take clonazpam 0.5mg is contorling my seizurs but i had 3 seziures in the same days but 6 months ago after the 3 seziures in the same day i did not have no more seizures i started having seziures when i was 11 years old from now that i am 21 years old but with the meds i am getting controled by it and my mom also has seizures me and my mom have seizure only my mom has complex and grandmal but my mom takes the same meds but it did not work on her until because she did not feel like taking her meds no more she wanted to slow her med down but a new doc that she meet had seizures just like her in atlanta and said to her she has to take them if she does not she will not stop having seziure in or life or future so she is taking her meds and not having no more seizures this is a good sign that in the future my mom is not going to have to more seizure thats good now but what abouth me i mighjt have appoinment this august 13 with my new doc or august 30 if they did not have my mom first but i guess they will pick me first because i was 19 years old when i did my egg i have not had my egg for so long and i thing i have to take my egg and check my blood pressure too nice talking to you where are you from please relpy back to me as soon as posiblle i love to be your friend |
Hi
katalin cristofaro This is Tany From Atlanta and I have Grandmals i used to take the pills that your husband took the daltin that you said it was not that to good they change in to tekital and it was not good and again they change in to daltin but it did not work and and now i take clonazpam 0.5mg is contorling my seizurs but i had 3 seziures in the same days but 6 months ago after the 3 seziures in the same day i did not have no more seizures i started having seziures when i was 11 years old from now that i am 21 years old but with the meds i am getting controled by it and my mom also has seizures me and my mom have seizure only my mom has complex and grandmal but my mom takes the same meds but it did not work on her until because she did not feel like taking her meds no more she wanted to slow her med down but a new doc that she meet had seizures just like her in atlanta and said to her she has to take them if she does not she will not stop having seziure in or life or future so she is taking her meds and not having no more seizures this is a good sign that in the future my mom is not going to have to more seizure thats good now but what abouth me i mighjt have appoinment this august 13 with my new doc or august 30 if they did not have my mom first but i guess they will pick me first because i was 19 years old when i did my egg i have not had my egg for so long and i thing i have to take my egg and check my blood pressure too nice talking to you where are you from please relpy back to me as soon as posiblle i love to be your friend |
RE: Depakote
Submitted by WashkuhnR on Wed, 2004-08-04 - 19:22
I've had a lot of experience with different drugs. One thing I have told my doctor is what good does it do to not have a seizure if you can't live a reasonable life. I've told her I wouldn't take stronger medication and I insist on changing medication if one makes me feel to uncomfortable. Watch that dilantin doesn't cause problems with his teeth and gums because it probably will. Write to the drug companies and tell them you can't afford the drugs and sometimes the cut the costs. Be careful with generic drugs because what a drug store does is get its generic drugs from the cheapest provider, and a certain size drug from one company does not have the same strenght as the same size from a different company so I always take name brand drugs. Even though there real expensive, why go through all that testing if you are just going to take something of any strenght?