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8 year old with rolandic epilepsy

Sun, 12/05/2004 - 20:26

Hi,

My son was diagnosed in spring 2003 after several mild seizures. He has been on carbitrol since then -150 mg 2xday. Yesterday his neurologist increased the dose to 200mg 2xday. He has been having difficulties in school with distractibility and handwriting. The distraction issue started about the time his meds started, and increased when his dosage increased. We are in the process of working out with Drs. meds for add/adhd. Has anyone had similar distraction problems while on carbitrol/tegretol? And, how about handwriting?

Thanks, robin510

Comments

Re: RE: 8 year old with rolandic epilepsy

Submitted by Texas on Sat, 2009-11-07 - 19:05
 
IMy 9 year old son was diagnosed with BRE last spring - also diagnosed with a mild case of sleep apnea.  We, too, chose not to medicate.  Last year he was inconsistent in school which we attributed to his sleep issues.  This year he is really struggling as the work is more demanding.  The neurologist that diagnosed him basically gave us the diagnosis, said it would go away by the age of 15 or so and then told us "no further treatment unless he develops daytime seizures" which she said was highly unlikely and then escorted us quickly out the door.  She really made it sound as if this was just a little routine blip on an EEG.  I am sure this neurologist is used to seeing children who are not as fortunate, but we can't seem to get anyone to answer any questions we have about BRE and whether this could explain his recent learning difficulties.  I wrote to the neurologist with a few questions I had after I had time to digest the diagnosis and she had her assistant call me and give me some comments that she relayed.  Finally, her assistant said that BRE, in my son's case, can not be the cause of any learning or memory issues and that if he struggles we should schedule another appointment to have him tested for ADD or ADHD.  I have no problem with additional testing, but all the research I have done states that BRE frequently can cause learning difficulties.
I have been to the pediatrician, who told me to go back to the same neurologist and the school doesn't seem concerned as he does "fine" and is not affecting their numbers by failing any of the standardized tests.  In the meantime my son, who was a very good little student, is now saying things like he is "stupid", he hates school, he can't remember anything and that sometimes people talk to him and he doesn't know what they are saying...etc...
If it is a direct, simple problem i.e. multiplication he will get 100%, if it requires any two step or complex summary of material he will get an F (37% on one math test, 43% on one science test, 54% on one social studies, yet 100% on many others).  In addition, I notice that he has completely forgotten things from last year, a song from a skit he did, the song about the states - can't even remember that he learned it at all.  In addition, every morning I have to do math problems with him to make sure he remembers how to do them, and read something to make sure he is paying attention to every word.  I must supervise all his homework assignments.  In short, no one else thinks this is a problem, except me who spends hours with my son explaining what I know the teacher explained all day.  Watching my son's face when he presents me with his F's are breaking my heart as is studying for a test and sending him to bed knowing the material and then having him wake up the next morning only remembering half of the material.   Have you found anyone to help you with your son?  Do you have any advice for me. 
We live in Connecticut, close to NYC
IMy 9 year old son was diagnosed with BRE last spring - also diagnosed with a mild case of sleep apnea.  We, too, chose not to medicate.  Last year he was inconsistent in school which we attributed to his sleep issues.  This year he is really struggling as the work is more demanding.  The neurologist that diagnosed him basically gave us the diagnosis, said it would go away by the age of 15 or so and then told us "no further treatment unless he develops daytime seizures" which she said was highly unlikely and then escorted us quickly out the door.  She really made it sound as if this was just a little routine blip on an EEG.  I am sure this neurologist is used to seeing children who are not as fortunate, but we can't seem to get anyone to answer any questions we have about BRE and whether this could explain his recent learning difficulties.  I wrote to the neurologist with a few questions I had after I had time to digest the diagnosis and she had her assistant call me and give me some comments that she relayed.  Finally, her assistant said that BRE, in my son's case, can not be the cause of any learning or memory issues and that if he struggles we should schedule another appointment to have him tested for ADD or ADHD.  I have no problem with additional testing, but all the research I have done states that BRE frequently can cause learning difficulties.
I have been to the pediatrician, who told me to go back to the same neurologist and the school doesn't seem concerned as he does "fine" and is not affecting their numbers by failing any of the standardized tests.  In the meantime my son, who was a very good little student, is now saying things like he is "stupid", he hates school, he can't remember anything and that sometimes people talk to him and he doesn't know what they are saying...etc...
If it is a direct, simple problem i.e. multiplication he will get 100%, if it requires any two step or complex summary of material he will get an F (37% on one math test, 43% on one science test, 54% on one social studies, yet 100% on many others).  In addition, I notice that he has completely forgotten things from last year, a song from a skit he did, the song about the states - can't even remember that he learned it at all.  In addition, every morning I have to do math problems with him to make sure he remembers how to do them, and read something to make sure he is paying attention to every word.  I must supervise all his homework assignments.  In short, no one else thinks this is a problem, except me who spends hours with my son explaining what I know the teacher explained all day.  Watching my son's face when he presents me with his F's are breaking my heart as is studying for a test and sending him to bed knowing the material and then having him wake up the next morning only remembering half of the material.   Have you found anyone to help you with your son?  Do you have any advice for me. 
We live in Connecticut, close to NYC

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