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heterotopic periventricular grey matter

Thu, 10/14/2010 - 12:17
Topic: Epilepsy.com Help
my son is 12 when he was 3 he had a nasal dermoid cyst removed..since been 6 or 7 he has had very bad migraine..that can last for days he also so has very bad memory loss and as to be remined all the time about what he was sent to get or do sometime he doesnt even know what he is doing he will just stop and stare..now my gp is saying he thinks its a form of epilepsy..but my consultant neurologist has done c t scan said that fine did mri said that was fine to but then last week got same letter about the mri scan but it says....THERE IS HETEROTOPIC LEFT FROUNTAL PERIVENTRICULAR GRAY MATTER...now what im wanting help with here is can this gray matter caues a from of epilepsy?.my gp is saying to me he as epilepsy..consultant is saying no and as never said anything about the grey matter to me before ..doi need to see a new consultant?..my son gets so upset about the amount off things he forgets,he is on betta blockers for headpain but thats it also he gets pain behide his left eye where as he will just sit and cry.... only thing that helps the pain in his head is to lay in the bath flat with just his face out as he says that it makes it better ..im at a loss as what to do ..any help is very welcome

Comments

Re: heterotopic periventricular grey matter

Submitted by coy on Fri, 2010-10-15 - 16:51
thank you thats what i wanted to hear iv been thini was going crazy as my neuro just been saying its just headache..?glad i no now that this causes epilepsy.

Re: heterotopic periventricular grey matter

Submitted by coy on Fri, 2010-10-15 - 17:15

 the ct scan was fine and was the forgot what they call it now the test where they put wires on his head that came back fine too..would i be rite in saying then even tho these 2 test came back ok the fact that the grey matter is there means theres is some form of epilpsy? sorry for asking all this but im so glad i found this place..its helping me a lot...

 the ct scan was fine and was the forgot what they call it now the test where they put wires on his head that came back fine too..would i be rite in saying then even tho these 2 test came back ok the fact that the grey matter is there means theres is some form of epilpsy? sorry for asking all this but im so glad i found this place..its helping me a lot...

Re: heterotopic periventricular grey matter

Submitted by tonialpha on Fri, 2010-10-15 - 19:03

I'm glad you were able to get help here.  You have gone thru alot.  When I was given these terms and told that it occured during gestation in the 4th to 5th week. It was no one's fault! It was a possible cause of seizures it was not given a definite cause.  When I communicated w/ more people that I used to work w/, patients were given terms of idiopathic or unknown causes of seizures. I used to work in a research group in Neurology.  It reassured me that things are being shown all the time to help us.  

You and your son have dealt w/ things wonderfully.  You are a great mom and the people in this group have helped.  I wish a good future for your family.

I'm glad you were able to get help here.  You have gone thru alot.  When I was given these terms and told that it occured during gestation in the 4th to 5th week. It was no one's fault! It was a possible cause of seizures it was not given a definite cause.  When I communicated w/ more people that I used to work w/, patients were given terms of idiopathic or unknown causes of seizures. I used to work in a research group in Neurology.  It reassured me that things are being shown all the time to help us.  

You and your son have dealt w/ things wonderfully.  You are a great mom and the people in this group have helped.  I wish a good future for your family.

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