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Epilepsy and Illegal drugs - experiences

Sat, 04/16/2005 - 19:30

Hi there everyone. Firstly I am in no way linked to the medical profession, and have no formal medical training or experience. I just thought I would stick this in to hopefully answer the questions of some parents and kids alike who do/have/are thinking of trying illegal drugs, and who live with epilepsy. I am on quite high levels of medication to control my fits; I am in my mid 20's. Recreational drugs have played a part in my life since I was about 15, nothing wrong with my upbringing, it was perfect. It was just something I tried and liked - sorry. From my experience parents are often more worried about their childÂ’s condition than the patient themselves, something I might understand if I become a parent one day. I will try and loosely go though the drugs I have tried and the effects regarding my epilepsy. To kick off with, everyoneÂ’s epilepsy is different, from what I have been taught no one person is the same as another when it comes to this condition, which MUST be taken into account when reading this. I have smoked cannabis for some time now. All different sorts, all different amounts, all over the globe (including a regular pilgrimage to Holland). I can quite honestly say I have never even had a twitch - let alone a full blown fit - while under the influence of cannabis. Hallucinogens - LSD and magic mushrooms, are also substances I have enjoyed -- again never any problems. A good friend who is also epileptic felt a bit strange once when he popped to a local bar having dropped 2 acid trips. Probably more to do with the paranoia of being off his pickle in a public place than the epilepsy (he had done them many times before, and has done them since) but I have to mention this. Ecstasy. Not really my favorite drug. Have had it a number of times and it is not really my thing, but it has never effected my epilepsy in any noticeable way. Speed (amphetamines) is something I have used for all night parties and raves. Sleep deprivation used to be a problem for me with regard to my epilepsy; the drugs never caused me any problems. Mescaline. Quite rare these days (parents might remember it!) either synthesized of natural never caused me any problems. Mescaline is the psychoactive ingredient in peyote and san pedro cacti and has similar effects to lsd or shrooms. Cocaine is another drug I have dabbled in, not in vast quantities mainly due to the cost. Again no noticeable problems. I understand for reading up that coke could seriously affect your epilepsy; I have never had that much, therefore I would recommend you ignore my experience with this substance. Alcohol. The most problems I have ever had from a drug have resulted from alcohol, including fits. I now generally avoid alcohol as a matter of course – everyoneÂ’s different. I never mixed drugs and alcohol. That is as *far* as my drug experiences have gone, like any drug habit the temptation is to push it as far as you can. I have pushed all the above except ecstasy and cocaine as far as you realistically go, and the only effects I have experienced have resulted from the drug, not the epilepsy (non-withstanding alcohol). This rant has been written as honestly as I can. I am in no way condoning the used of illegal drugs, I hope that either parents or kids thinking of trying the above might find this useful. In the words of the late great Hunter S Thompson:  "I hate to advocate drugs, alcohol, violence or insanity to anyone, but they've always worked for me". I have written this for parents as well as kids. I know how worried my parents were about illegal drugs with my condition. I also know how worried some kids are about trying recreational drugs with their epilepsy. This experiance results from many years of trial. I apologize if people out there find this article irresponsible, it was not my intention. I am simply hoping to answer some questions that people might be too embarrassed or scared to ask. I will finish with the fact that my friends have always been very kind, caring and supportive with regards to my condition – always asked me if I have been sure about something I have chosen to do and never exhibited any form of peer pressure. I consider this to be a very important aspect of my drugs honeymoon, I would have never felt at ease if my friends were not supportive, consequently I would probably not have gone as far as I have. If there are any replies (questions or criticisms) I will answer them to the best of my knowledge. Look after yourself everyone, and take care. Please excuse the inevitable spelling cock-ups!

Comments

Re: RE: RE: Epilepsy and Illegal drugs - experiences

Submitted by emtjason on Mon, 2008-02-18 - 14:07
Pretty crazy to use all those and not get addicted genes or whatever the reason your lucky. I've had a friend get addicted to a few of those and end up in drug rehab because of it. The withdrawal symptoms are horrible ...I'm with you on the mj though it would be nice for some more concrete study's on it's help.

RE: Epilepsy and Illegal drugs - experiences

Submitted by mak1123 on Thu, 2005-04-14 - 13:20

hey  jinx1131xnij !!!!!!!!!!!!!!!!!!!

i just read your note, i have never gotten addicted to any of them either!  I would like to talk to you some time about this..

You can get in contact with me at mak1123@yahoo.com

 

Melissa

hey  jinx1131xnij !!!!!!!!!!!!!!!!!!!

i just read your note, i have never gotten addicted to any of them either!  I would like to talk to you some time about this..

You can get in contact with me at mak1123@yahoo.com

 

Melissa

RE: Epilepsy and Illegal drugs - experiences

Submitted by puckyv on Thu, 2005-04-14 - 14:32
I too dabled in the drug and alclhol for many years and felt that it was a solution to the meds that I was taking, I was tired of having to take them and the side effects made things no better. I was diagnosed at 13 with grandmal siezures and was on pheno's 2-3 'times a day. It never made life easy for me, being in a sort of " la la land" type stage for years, it grew rather tiresome. At first I was very loyal to the meds and it was a good thing because I was hooked on speed, (yes I know, what was I thinking?) and it seemed I could do all I wanted as long as I took the meds. I eventually came to the conclusion after having many episodes it was time to quit so I did. Then I got the idea that pot and beer would do it for me and it did! That is even without the meds. So for many years that was what I did, and I only used the meds if I felt "funny" which means that feeling of am I going to have one or not? I don't know if that makes sense but I usually knew what it felt like hours or min before one would come and grew to know that sensation all to well. Anyhow, in the last 8 years I have had 5 seizures which is good for me when I was having 3-5 a year in the years before. I recently took stock of my life and decided to be completely sober and I have for 7 months that includes no meds either and nothing has changed to this day. I am now 31 and sober, and to be honest with you the drugs are not a answer, it is a excuse in my opinion. And in the end really it helps but not for all the reasons you may think they do, try to adjust your life habits eating,sleeping, stress related activities, and such that may help. Maybe I am one of the lucky ones, my last episode was almost 3 years ago, is it gone? Am I cured? Or am I just doing the right thing for me? Who knows only time will tell. I hope that I did not offend anyone but I saw this and had to respond.

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