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Seizure Protocol at school
Sun, 01/08/2006 - 18:26Topic: Parents & Caregivers
Does anyone here have a teen who has tonic clonic seizures and therefore requires Diastat at school? If so, do you have a seizure protocol/plan of action on when and how to use it at school, and when and if to call an ambulance? If yes to this, how did you go about getting this plan set up? I have a teen whose SP & CP are becoming more TC as he goes through puberty, and I've requested that Diastat be on hand at school just in case. My son's neurologist wrote up a plan, but the school doctor is refusing to follow it...she wants 911 called for every unresponsive seizure (which could include any of his seizure types) and does not want the Diastat used. I am pushing for the 5 minute rule and the use of Diastat if necessary....she's fighting me all the way, eventhough his neurologist has written the plan! Can the school doc do this? Can she over ride my child's doctor's plan? We live in NY and he goes to a public school. Thank you in advance!
Wendy
Comments
Re: Re: Re: Re: Re: Seizure Protocol at school
Submitted by wmott1122 on Fri, 2006-01-13 - 06:35
I'll let you know the results as soon as someone from the district contacts me....I'm giving them a few days, so may be next week before I hear anything and reply here! Thanks for all the support and words of encouragment! It's not easy to tackle a large group who seems to be against you....very intimidating! Hopefully we will succeed w/o legal action! Keep your fingers crossed!
Wendy
Re: Re: Re: Re: Seizure Protocol at school
Submitted by sonya walden on Sat, 2006-01-14 - 16:32
Wendy!
That is a awesome response from the state system. Hooray! I am glad that there is someone that is smart enough and honest to say the truth and actually want to see a child treated correctly and their medical needs met to all's responsibilities. I think I would frame that letter...it is not everyday that you get a letter from the school system wanting to act in your favor. Another victory for a deserving child.
Things are so negatively treated and handled here in Tennessee that I am thinking of starting an organization to inform and get awareness out about epilepsy in childhood and all of the different treatments and rules that need to be complied with. If there parents around here don't start becoming more proactive, we are going to see so many of our precious children lost to their disorders due to lack of gumption and action.
Sonya
Re: Re: Re: Re: Seizure Protocol at school
Submitted by txrhb1 on Fri, 2006-01-13 - 02:33
WOW !! If that doesn't wake 'em up and make them do the right thing, my next step would be a lawyer! I know sometimes it's hard advocating with the schools, but it must be done. You have done a great service for your child! Way to go !! ((( hugs ))), Barbie *************************************** "We are each of us angels with only one wing, and we can fly only by embracing each other." -lucian de crescenzo