Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
pseudo seizures / non-epiletic seizures
Mon, 03/28/2005 - 18:39I need as much information on dealing w/ pseudo seizures as well as "regular" seizures. The meds for "regular" seizures is not controlling them completely. All tests (EEG, MRI, CT Scan, blood work) shows no seizure activity. I am now being sent to MCV in Richmond, VA for an EEG/Video/Audio. Docs are now saying that part of my problem in pseudo seizures. I don't feel anxious / stressed... live a "normal" life - I am used to being on the go / very active got a PT job I love, grandkids, great husband, kids, etc. - must be something I am not aware of which is what I am having a very hard time with. What is treatment for pseudo seizures? Is there medication for this?
Would appreciate any advice or insight anyone can give that suffers from this. I have been having multiple seizures weekly for 2 months & end up in the ER and then home in bed for days from Rx and being so tired. My life has come to a hault because of these seizures. Therefore, I am becoming very depressed and want my life back.
Karen / karenn@jamesewarren.com
RE: pseudo seizures / non-epiletic seizures
Submitted by kwgreulich on Mon, 2005-03-28 - 17:46
I was also told i have these, but i have other seizures as well. They told me i had these after i had my last brain surgery to remove scar tissue the doctors said was caused by lack of Oxygen during grand mals. He said it was due to nerves and that i had to see a psychiatrist. Well, i did try that, but he, as well as my pastor who has a Masters in psychology and the local doctors tell me they don't think nerves are the problem. I do the best i can and am working an average now of about 35 hours per week and still manage to teach a Bible study at the church and help lead the singing.
During the night last night i had a period of about 2 hours seizures.
With the pseudoseizures the only difference i have really found for sure is that they can not record them on an EEG. That may be because they are deep in the brain or something. In many cases they find out later that they are real seizures. For example, one patient who was considered for surgery that i know of had wires put into the head through where the upper and lower jaws attach to be monitored. there were several wires along the lower side of the brain and they picked up seizures that had not been recorded before. He was in the hospital for two weeks at that time and has since had surgery removing brain tissue where seizures had been recorded as starting. These would not show up on a regular EEG.
I was also told i have these, but i have other seizures as well. They told me i had these after i had my last brain surgery to remove scar tissue the doctors said was caused by lack of Oxygen during grand mals. He said it was due to nerves and that i had to see a psychiatrist. Well, i did try that, but he, as well as my pastor who has a Masters in psychology and the local doctors tell me they don't think nerves are the problem. I do the best i can and am working an average now of about 35 hours per week and still manage to teach a Bible study at the church and help lead the singing.
During the night last night i had a period of about 2 hours seizures.
With the pseudoseizures the only difference i have really found for sure is that they can not record them on an EEG. That may be because they are deep in the brain or something. In many cases they find out later that they are real seizures. For example, one patient who was considered for surgery that i know of had wires put into the head through where the upper and lower jaws attach to be monitored. there were several wires along the lower side of the brain and they picked up seizures that had not been recorded before. He was in the hospital for two weeks at that time and has since had surgery removing brain tissue where seizures had been recorded as starting. These would not show up on a regular EEG.