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results from my video EEG monitoring, please read
Sun, 02/13/2005 - 11:06it was originally supposed to be 5 days, monday through friday but i got out early, on thursday afternoon.
here's the thing...they did capture a few staring spells. And from what I was told when I was discharged, what they found going on in my brain in the EEG was very rare. They don't think they are actually seizures, although a nurse witnessed me having one on the video feed and came in from the nurses's station and was asking me if i was ok..i was delirious. They are confused, I didn't have any spells until late tuesday night/ early wednesday morning, because on tuesday my neuro ordered sleep deprivation. They don't think they are seizures but they cannot rule it out. But as of right now, they haven't a clue what the problem is. they just know that what was going on was "rare." i see my neuro again in 2 weeks and they are going to be reviewing every inch of it to try and see what's going on and will let me know if they come up something in those 2 weeks. the residents that came in with about 3 of the neurologists when they announced this to me, well they all seemed confused. one of the neurologists thought they were probably seizures, the other wasn't so sure. and not knowing is eating a way at me. i'm pretty depressed right now. i'm naturally worried. if anyone has had similar experiences, let me know what happened and what the diagnosis was.
RE: results from my video EEG monitoring, please read
Submitted by meghan555 on Sun, 2005-02-13 - 11:06
Hello, i just want to tell you that i have a four year old that has staring, do you know if you pick at things like your nails or lips while you are doing this. My four year old started having focal seizures in Oct. they did two MRI's and 4EEG's and 2 EMU's (this all happened in about a 5 week period) the Dr. told me that she had a tumor on the right front tempal, they did surgery on Dec. 29. They said that the surgery went really good and they got it all, they had to remove the hole right front tempral lobe. she now has a metal plate in her head. They sent the tissues out fro a biopsy only because its is standard procedure. About three weeks later(with no focal seizures since her surgery) the Dr. called back into the office and told me that she has something called Rasmussen Encephalitis, and that she has 2 years to live. Now all she does is the Staring seizures and is on 1000mg of Depakote. They are thinkling of removing the whole right side of her brain. About 1 in a million get it. Before the surgery she was having about 200 seizures a day. Sorry i didn't mean to ramble on about this it has just been very HARD. Good lick with you and i am really courious if you pick while you are staring. Her Dr. said it goes together.