Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Is anyone NOT medicating for Absence Seizures?

Wed, 02/03/2010 - 14:14

HI - our daughter was diagnosed over the summer with Absence Seizures. Her pediatric neurologist has recommended starting her on Ethosuximide. She has assured us that the side effects are primarily "upset stomach" and that can remedied by taking the medication with food.

 We are new to all of this and quite overwhelmed. Currently, these seizures are not interferring with her school work, behavior, or social activities. Since it is most likely that she will "out-grow" them we are reluctant to start medication.

 Is there anyone "out there" who has never medicated OR started the medication and then stopped it b/c of the side effects?

We don't want to make the wrong decision. Thank you for any insight.

Comments

Re: Is anyone NOT medicating for Absence Seizures?

Submitted by Taviuss on Sun, 2012-12-23 - 22:42
I am not dealing with this for my children, but rather for me. I was diagnosed with a brain tumor in 2007, after having an absence seizure of my own. After surgery, I still have them periodically. I was put on Keppra for a while, but it really didn't seem to help me a lot. After that, I just decided that I would cope with it myself. I no longer drive, due to the seizures. I generally know when they are coming, the aura lets me know soon enough to set myself down... My health is generally good. I do have some information, from an adult's perspective, on what a seizure is like. For those who have interest in what an actual seizure is like, feel free to view my own blog, www.whoistavius.com/seizures.htm. This one describes a seizure I had a couple of days ago. Also, I may later put some more data on the blog - feel free to look through and see what interests you there. My own seizures generally result in a temporary memory loss. Even if they are only a few seconds, it is still a lot of times an hour before everything comes back to my memory. It is because of these seizures that I am on disability, as it is impossible to say when I would have them. In some jobs it would be a big danger, so I choose to not do anything outside the home, workwise. I am at the moment working to build a home based online business, as I do still have skills - I don't like having to be dependent on another for my income.

My soon to be eight year old

Submitted by jimenezjimenez1981@hotmail.com on Mon, 2014-08-18 - 10:21
My soon to be eight year old was diagnosed last summer with petit mal seizures. Her pediatrician referred her to a pediatric neurologist, who prescribed medication. My husband and I opted to look for other options. We took her to a chiropractor and she went seizure free for a week. The relief did not last long, she is down from the noticeable eight to ten a day to three to four a day and maybe only one on a really good day, but it's been a combination of daily changes to lifestyle,diet and activities. Is anyone near the Santa Barbara area? I know Ailee(i-lee) would love to know she is not alone. 

Hello my name is mary morgan

Submitted by Anonymous on Sun, 2015-03-29 - 23:19
Hello my name is mary morgan  I want to give a testimony about my HIV virus that  was cured by a great spell caster  PROFECTEZIKE. Since last 4 months I have  being a HIV AID patient. I never think I live long again and am so grateful  about him PROFECTEZIKE. who help me cured my HIV AIDS last 3 weeks. I was in a  great pain so I told one of my best friends; he told me that there is a  great spell caster that can cure my Virus. I asked her if she had his  email, she gave me his email, I emailed him he talked to me and he perform  the necessary rituals and he told me that after two weeks I should go for a  test. Which I did, when the doctor told me that am now a HIV negative I  couldn’t believe myself I went to see another doctor the result was still  the same, I was human on planet earth, so I emailed him and thanked him.  Please if you are having a similar problem please visit him/contact him at ; profectezike@gmail.com ; all  thanks to PROFECTEZIKE.  Regard...  

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.