My Story

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I just turned 21 and I was diagnosed with a seizure disorder a little under a week ago. My fiance was there with me when i found out and has supported me through all of it, the past few months with all my health problems she had been there for me and i can't thank her anymore but i've never been so scared and i don't know how to handle this all. i've been trying to hold myself together but i lay here in bed at 130am and im wide awake looking up everything possible on what seizure are, the medicines i am on, the side effects, the stories, etc. it's all too much and i don't know what to do. i know i should reach out to my friends and family but im scared to lose them cause what if i'm too much for them to handle. my fiaince's friend the other day asked her if she was still gonna stay with me now that i have this disorder and to even hear that killed me inside to think anyone would leave...so now im even more scared to talk about it and tell people. what if that can't except me for me...not only am i gay but now this. Come on when am i ever going to get a break. If anyone can give me advice or anything to help maybe tips on reaching out, talking about it, ways to relax and calm down, anything at this point would help. Thank You.

Comments

Re: My Story

Submitted by Stay_Strong21 on Wed, 2012-12-12 - 02:37

Thank You.

I was twelve when I was

Submitted by bigpappadanster76@gmail.com on Sat, 2014-03-22 - 19:43

I was twelve when I was diagonosed with seizures. I have had a hard time with my medications through out school with different millegrams of the old Tegretol which basically turned me into a zombie. In high school, you basically become the quiet little freak. After school, life got tougher, trying to hold down a job. I was offered SSI twice while I held down some job. I was working at a pipe factory in heat, which I know I shouldn't be working around heat, because heat causes me to have siezures. I began to have seizures; a lot of them! That's when I when I decided it was best to bow out and accept my disability. I'm thirty eight now and still suffer seizures and other health problems. I suffer a lot of side effects. I have a combination of two types of seizures; complex and partials. When I was a kid, I used to run and cry out, "Oh Jesus, oh Jesus, Oh Jesus!" , because I was crippled in a world not of this world but in a world of fear. All I could see and know and feel and think was panic, fear and run for your life!!! My mamma worried about me all of the time and she was raising three of us boys by herself while going to college. I still have those type of those seizures, but on a lighter scale. The really bad ones, I run. Today, I was riding with my dad and my son in the back seat of my dad's jeep. I don't drive. I was grabbing my dad asking for my dad to pull over on the side of the highway to let me walk it off on the grassy field away from the highway. This would be the first time I detected a seizure my self in my life time. Afterwards, I was real sleepy. So, my advice is to keep seeking support from your family and your boyfriend and continue taking your medications. It's important that you stay on your medication!!! Medications will not, will not cure epilepsy, but only suppress the really bad ones!!! Keep your doctors informed everytime you have a seizure by keeping a journal or by writing it down. Do not be afraid. Fear only triggers the seizure more!! Spit in the eye of fear and piss down fear's throat. I hate these damn seizures and would not wish them on my worst enemy, except for the devil himself. God bless and hope for the best!