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seizures after brain surgery

Sun, 03/09/2008 - 08:03
Hi....my wife had a brain tumor removed 7 years ago and since then has suffered from seizures.  She has had simple partial as well as at least one episode of Grand Mal seizures.  She takes Topomax and Keppra.  Most of the time she is fine but occassionally she has seizures in her facial muscles that are unseen by me or anyone else.  She says she can feel herself seizing.  Anyway, my questions is:  has anyone else experience seizures after a brain surgery and if so what is the prognosis for living seizure free?  Thanks

Comments

Re: seizures after brain surgery

Submitted by joseph.b.england on Sat, 2011-04-23 - 15:10

I had a pituitary macroadenoma that had infection involved removed in early 2003. Everything had been fine since then until last May.  I started having psuedo-seizures and grand-mal seizures and no neurologist could pinpoint why it was happening, until my last ER visit. The neurologist that was called in looked at my entire case history and said that anyone who has had a brain tumor, especially when infection is involved, can have seizure disorders starting 6 days, 6 years, or even 60 years after they had surgery. I have since been put on Dilantin to control the seizures and Flexiril and Hydrocodone as needed just in case seizure activity starts.  So far, I have dropped from 3-4 grand-mal seizures a week, to AT MOST 1-2 psuedo-seizures per week.

I thought this could help you out and give your neurologist a place to start/look.

Joseph

Nashville, TN

I had a pituitary macroadenoma that had infection involved removed in early 2003. Everything had been fine since then until last May.  I started having psuedo-seizures and grand-mal seizures and no neurologist could pinpoint why it was happening, until my last ER visit. The neurologist that was called in looked at my entire case history and said that anyone who has had a brain tumor, especially when infection is involved, can have seizure disorders starting 6 days, 6 years, or even 60 years after they had surgery. I have since been put on Dilantin to control the seizures and Flexiril and Hydrocodone as needed just in case seizure activity starts.  So far, I have dropped from 3-4 grand-mal seizures a week, to AT MOST 1-2 psuedo-seizures per week.

I thought this could help you out and give your neurologist a place to start/look.

Joseph

Nashville, TN

Re: seizures after brain surgery

Submitted by princesskyles on Thu, 2012-04-12 - 10:16
What is the seizure cause and where are the seizures comming from? MRIs CT scans, EEGs can determine this. Also how the seizures look in the brain. I have had 4 testing surgeries and being told how likley I was to be seizure free they did not want to go though with the surgery because of where in the brain my seizures were mostly comming from. The doctors figured it would countinue and create more scarring in my brain tissue. Its better to leave as is. I have about 5 noticed complex partial seizures and 2  noticed absnense seizures a day. And 102 seizures a day. I am currently waiting on a refferal for a surgery for parkinsons that is proven to help with seizures. It is like a pacemaker but in my head.

Re: seizures after brain surgery

Submitted by LynnA on Thu, 2013-08-08 - 17:56
Hi, I'm 32 and have simple partial seizures. I had a right temporal lobectomy 6 weeks ago and had my first post op aura last night, no seizure to follow though. I was still devastated afterward, thinking that surgery was unsuccessful when my recovery was going so well. I have heard it is normal to have an aura or seizure at this stage, due to dried blood still absorbing into the body and the brain continuing to heal. Lately, I've been feeling really "low" and emotional - not sure if that has anything to do with it. Has anyone experienced this? I'm new to blogging... Thanks for your help! Lynn

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