The Epilepsy Foundation wants people with epilepsy to know that “No seizures, no side effects” should be the ultimate goal of epilepsy treatment.
Unfortunately, too many people with epilepsy whose seizures can be controlled accept continued seizures in their life — and may be unaware of potential strategies to prevent them.
The Epilepsy Foundation believes that even one seizure is not acceptable and is taking steps through research and the development of new therapies to work toward no seizures for all people living with epilepsy.
And for people with the most severe types of difficult to control epilepsy, there are steps an individual can take to lower one’s risk, including participating in research to find new, more effective therapies.
New Treatments and Therapies in a Timeframe that Matters
One example of this is the Rare Epilepsy Network, which unites 26 rare epilepsy organizations, Epilepsy Foundation, Research Triangle Institute, Columbia University, and New York University to expedite research into the rare epilepsies.
Another example of our commitment to preventing seizures and sudden unexpected death in epilepsy (SUDEP) is the SUDEP Challenge Initiative, which will be awarding more than $1 million for a series of prize challenge competitions around predicting and preventing SUDEP.
What You Can Do
Regardless of a person’s current level of seizure control, there are many proactive steps people with epilepsy can take once they have committed to exploring all options to stop seizures. These include:
- learning about seizures and SUDEP and talking to their healthcare providers about their risk
- identifying and tracking seizure triggers so one can take steps or make lifestyle changes to avoid them
- exploring all treatment options, including new and add-on medications, surgery, devices, dietary therapy, and other options with an epilepsy specialist
- having an evaluation at a comprehensive epilepsy center
- participating in clinical studies to accelerate new therapy development
- connecting with your local Epilepsy Foundation for services, support, and referrals
These steps will help most people living with seizures improve seizure control and quality of life.
The one third of people living with persistent seizures even with existing therapies and already following these seizure management practices may want to consider participating in medical research that can lead to effective treatments. Learn more about epilepsy clinical trials and research.
- Find Your Local Epilepsy Foundation
- Find an Epilepsy Specialist
- Managing Seizure Triggers
- Epilepsy Self-Management Programs
- Tracking Seizures
- Refractory Epilepsy
- Types of Epilepsy Syndromes
- Clinical Trials and Studies
- Our Commitment to Finding New Treatments and Therapies
- The Epilepsy Therapy Project Initiative: Accelerating New Therapies
- Learn about Our Research Program
- Rare Epilepsy Network
- SUDEP Challenge Initiative