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UPDATED: Sat, 11/10/2007 - 10:51pm

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VNS Surgery

If you (or your loved one) have had a vagus nerve stimulator implanted, what happened after it?

no more seizures
5% (11 votes)
helped control seizures a lot
34% (76 votes)
helped a little bit
35% (78 votes)
didn’t help at all
17% (37 votes)
worse off
10% (22 votes)
Total votes: 224

View results
View past poll results

Symptoms of a Seizure

A seizure is usually defined as a sudden alteration of behavior due to a temporary change in the electrical functioning of the brain, in particular the outside rim of the brain called the cortex. Below you will find some of the symptoms people with epilepsy may experience before, during and after a seizure. Seizures can take on many different forms and seizures affect different people in different ways. It is not implied that every person with seizures will experience every symptom described below.

Seizures have a beginning, middle, and end

When an individual is aware of the beginning, it may be thought of as a warning or aura. On the other hand, an individual may not be aware of the beginning and therefore have no warning.

Sometimes, the warning or aura is not followed by any other symptoms. It may be considered a simple partial seizure by the doctor.

The middle of the seizure may take several different forms. For people who have warnings, the aura may simply continue or it may turn into a complex partial seizure or a convulsion. For those who do not have a warning, the seizure may continue as a complex partial seizure or it may evolve into a convulsion.

The end to a seizure represents a transition from the seizure back to the individual’s normal state. This period is referred to as the “post-ictal period” (an ictus is a seizure) and signifies the recovery period for the brain. It may last from seconds to minutes to hours, depending on several factors including which part(s) of the brain were affected by the seizure and whether the individual was on anti-seizure medication. If a person has a complex partial seizure or a convulsion, their level of awareness gradually improves during the post-ictal period, much like a person waking up from anesthesia after an operation. There are other symptoms that occur during the post-ictal period and are detailed below.

Please note: Below is only a partial list, some people may experience other symptoms not listed below. These lists are meant to help patients communicate with their physicians.

Early seizure symptoms (warnings)

Sensory/Thought:

  • Deja vu
  • Jamais vu
  • Smell
  • Sound
  • Taste
  • Visual loss or blurring
  • Racing thoughts
  • Stomach feelings
  • Strange feelings
  • Tingling feeling

Emotional:

  • Fear/Panic
  • Pleasant feeling

Physical:

  • Dizziness
  • Headache
  • Lightheadedness
  • Nausea
  • Numbness

No warning:

  • Sometimes seizures come with no warning

Seizure symptoms

Sensory/Thought:

  • Black out
  • Confusion
  • Deafness/Sounds
  • Electric Shock Feeling
  • Loss of consciousness
  • Smell
  • Spacing out
  • Out of body experience
  • Visual loss or blurring

Emotional:

  • Fear/Panic

Physical:

  • Chewing movements
  • Convulsion
  • Difficulty talking
  • Drooling
  • Eyelid fluttering
  • Eyes rolling up
  • Falling down
  • Foot stomping
  • Hand waving
  • Inability to move
  • Incontinence
  • Lip smacking
  • Making sounds
  • Shaking
  • Staring
  • Stiffening
  • Swallowing
  • Sweating
  • Teeth clenching/grinding
  • Tongue biting
  • Tremors
  • Twitching movements
  • Breathing difficulty
  • Heart racing

After-seizure symptoms (post-ictal)

Thought:

  • Memory loss
  • Writing difficulty

Emotional:

  • Confusion
  • Depression and sadness
  • Fear
  • Frustration
  • Shame/Embarrassment

Physical:

  • Bruising
  • Difficulty talking
  • Injuries
  • Sleeping
  • Exhaustion
  • Headache
  • Nausea
  • Pain
  • Thirst
  • Weakness
  • Urge to urinate/defecate

If you or someone you know has the symptoms listed above -- you are not alone. Below are personal stories by people who have either experienced or witnessed seizure symptoms.

Adapated from: Schachter SC, editor. Brainstorms: epilepsy in our words. New York: Raven Press; 1993; and Schachter SC, editor.The brainstorms companion: epilepsy in our view. New York: Raven Press; 1995.

Topic Editor: Steven C. Schachter, M.D.
Last Reviewed:12/15/06

Continue to: Who gets epilepsy?


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