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We are working to secure more funding for a cure, support community-based programs for people living with epilepsy, eradicate stigma and discrimination, and protect patient access to medications and treatment.

You can make a difference by sharing your personal story! We're building a national movement of people affected by epilepsy and those that care for them. By taking action today, you can help us build a better tomorrow. Sign up today and take action!

 

Funding for Epilepsy Programs, Research, & a Cure

The Epilepsy Foundation supports funding increases for epilepsy research at the National Institutes of Health (NIH); epilepsy programs at the Centers for Disease Control and Prevention (CDC) focused on building safer communities for people living with epilepsy; and  promoting safety, efficacy and research at the Food and Drug Administration (FDA)

 

Access to Care

Timely access to appropriate care and effective coverage for epilepsy medications is a critical concern for people living with epilepsy, because epilepsy medications are the most common and most cost effective treatment for controlling and/or reducing seizures. Individuals living with epilepsy who experience a delay in accessing their medication due to prior authorization and step therapy requirements, high cost-sharing, medication substitutions without physician and patient consent, and onerous drug monitoring requirements, are at a high risk for developing breakthrough seizures and related complications, including Sudden Unexpected Death in Epilepsy (SUDEP). 

 

Research & Innovation

Innovation is of particular importance to the nearly one million people living with epilepsy who don’t have their seizures under control and are seeking new treatments and a cure, as well as many Americans living with complex chronic and rare conditions that are not appropriately managed with current treatment options.

 

Disability & Discrimination

Stigma surrounding epilepsy continues to fuel discrimination and isolates people with epilepsy from the mainstream of life. Despite great progress in recent years, epilepsy remains a formidable barrier to educational opportunities, employment, and personal fulfillment among older children and adults.

 

Note – The Epilepsy Foundation will remain fluid and responsive to legislation and regulatory proposals brought forward by Congress and the Administration.

 

The Epilepsy Foundation is leading a national campaign to address the problems faced by people with epilepsy. Learn more about our message and help us bring their message to legislators back home in your area!