This downloadable resource guide and information referral source provides a general introduction to epilepsy and addresses the most common concerns parents often have immediately after diagnosis. The toolkit provides practical advice and guidance and includes forms to help parents organize medical and educational information, take notes, and facilitate communication between all parties involved in a child’s care.
Many parents, family & caregivers have similar concerns regarding the care they give to people with epilepsy. When the person you care for is a child these concerns become more difficult and more important to address. In this section you will find common concerns about caregiving for epilepsy with a special emphasis on children.
Whether you are the parent of a child with epilepsy or the caretaker of a person with epilepsy, you have come to the right place.
- According to the latest estimates reported by the Centers for Disease Control and Prevention (CDC), about 0.6% of children aged 0 to 17 years have active epilepsy. When applied to the 2013 population, this is about 460,000 children aged 0 to 17 years.
- Of the 150,000 new cases of epilepsy diagnosed each year, approximately 50,000 of these cases will be diagnosed in children and adolescents under the age of 18.
- Epilepsy affects people at different ages and in different ways.
- For some, it will be a temporary problem, easily controlled with medication and outgrown after a few years.
- For others, it may be a lifelong challenge affecting many areas of life.
Here you'll find information about seizures and epilepsy in youth of all ages, from newborns to the teenage years. Some information is unique to specific ages, while others are common for all children with epilepsy.