Remembrance Wall at the 2015 National Walk for Epilesy.  View photos of the individual flags and a video of the wall.


The Epilepsy Foundation SUDEP Institute would like to express our deepest condolences to you and your family during this time. We understand this is a confusing and tragic time for you and we want to help. At the SUDEP Institute, you are not alone.

Our services for families include:

  • Accurate information regarding SUDEP and other causes epilepsy related deaths.
  • Peer Support Program that connects newly bereaved families with trained peer support who have experienced a death caused by epilepsy.
  • Individual or family support through licensed bereavement care providers and grief counselors who are also mothers who lost their daughters to SUDEP.
  • Online Bereavement Support Group designed to help families connect with others who have lost a loved one to epilepsy in a safe environment.
  • Regular email newsletters with information on navigating the grief process as well the latest news, research and efforts focused on preventing epilepsy mortality.
  • Remembrance pages where families can create a memorial or honorarium webpage to help families share their story to help raise awareness and understanding of SUDEP.
  • Advocacy, as needed on a case-by-case basis, which includes coordination and assistance with traversing the death investigation process.
  • Access and assistance in enrolling and participating in SUDEP-related research opportunities.

Call 800-332-1000 and press 1 or email sudep@efa.org to learn more about our services.

In addition to supporting families bereaved by epilepsy, the SUDEP Institute leads education and awareness efforts targeted to people living with epilepsy and their caregivers as well as medical professionals, including members of the death investigation team. We also drive and support research into the causes and prevention methods of SUDEP. Learn more about these programs and how you can become involved.

Additional resources for support after the loss of a loved one:

SUDEP Specific Support:

National Support Organizations

Local Support Services:

Contact your local Epilepsy Foundation for more information and community resources.

Additionally, many religious institutions, hospitals and hospice organizations offer local bereavement services.

Lantern of Hope
Bereavement Support Articles

Linda Coughlin Brooks RN, BSN, CT, the SUDEP Institute Bereavement Support Facilitator, provides regular articles on topics that are important to many bereaved families.  

Read Linda's articles.