The SUDEP Institute is proud to partner with organizations to ensure accurate information on SUDEP is available.  Below are some resources including:

PAME Conference and Webinar Series


The Epilepsy Foundation is a proud partner of Partners Against Mortality in Epilepsy (PAME). 

This multi-day learning event, the only meeting focused exclusively on increasing understanding of mortality in epilepsy, including SUDEP.  This program brings together clinical and basic science professionals, patients and their families to advance research, facilitate collaborations, engage patients to participate in critical research, and increase urgency around an overlooked and underfunded public health issue, while building understanding and support for each other.

In June 2012, PAME held its first three-day conference.  Devoted predominantly to Sudden Unexpected Death In Epilepsy (SUDEP), this conference brought together doctors, scientists, families and advocates from around the world to advance awareness and understanding of epilepsy mortality and SUDEP.

In June 2014 the second the second PAME conference was held in Minneapolis, MN.  Read the summary to learn about current research on potential causes of mortality in people with epilepsy, including respiratory issues, sleep, cardiac failure, and genetics.

Download the presentations and materials from the third PAME held in June 2016.

Sign up for the next PAME Webinar.

SUDEP Counseling: Risk Management for Clinicians - CME and CNE Webinar

Learning objectives for this two‐part webinar:

Counsel patients and families regarding SUDEP as appropriate for the level of risk related to the individual patient's epilepsy, increasing patient and family understanding of the disorder and improving adherence to treatment recommendations.

Incorporate established techniques for counseling patients and families in discussions of epilepsy and its potential consequences, providing opportunities for improved communications and patient/family understanding of risks associated with epilepsy.

A total of 3.5 CNE/CME credits available.

Understanding Sudden Unexpected Death in Epilepsy: How Can the Risk Be Minimized? - CME and CE WebinarSUDEP_Medscape.png

Presented by Michael R. Sperling, MD and Daniel Friedman, MD, MSc this MedScape webinar is intended for neurologists, primary care physicians (family practice and internal medicine), and nurses. The goal of this activity is to provide a recap of the most relevant SUDEP data from the 2015 AES meeting.

Upon completion of this activity, participants will be able to:

  1. Summarize the available and emerging clinical data in sudden unexpected death in epilepsy (SUDEP)
  2. Identify strategies for managing seizure treatment to minimize the risk of SUDEP

Epilepsy's Fatal Potential Radio Broadcast

On this edition of Iowa Public Radio's River to River, Ben Kieffer talks with one of the Universtity of Iowa's lead SUDEP researchers, Dr. George Richerson, as well as Roxanne Cogil, Director of Iowa Epilepsy Services at the Epilepsy Foundation and Teresa Elliott, who lost her son to SUDEP.

Investigating Deaths in Epilepsy Patients Webinar

Recognizing and accurately reporting epilepsy mortality is a critical step in understanding the causes and how to prevent epilepsy related deaths. To address this, we developed the Investigating Death in Epilepsy Patients Webinar. This unprecedented partnership led by the SUDEP Institute brought together all national death investigation organizations as well as the CDC, NIH, and the North American SUDEP Registry. Continuing Medical Education credit was provided by NYU School of Medicine. Post webinar evaluations demonstrated increases in knowledge of epilepsy mortality, awareness about how to accurately perform death scene investigations and autopsies, and understanding about how to fill out the death certificate so epilepsy deaths can be tracked. Share this free webinar with death investigators in your community

Epilepsy Mortality and Complicated Grief

Hosted by Linda Coughlin Brooks and Katherine Sheer, this webinar is targeted at grief counselors, therapists, social workers, and advocates. It will explain how epilepsy-related deaths often present unique challenges and will prepare participants to offer the support bereaved families need.

This webinar was hosted May 21, 2014 through a partnership with the Association for Death Educators and Counselors and is now available for download on demand. Learn more and register.

PAME 2014 Affiliate Attendess
Reviewed by: Joseph I. Sirven, MD | Patricia O. Shafer, RN, MN | Cyndi Wright on 4/2015

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