Care Coordination

The Care Coordination for Children and Youth With Epilepsy training is a case-based approach designed to develop, evaluate and adapt a care coordination model that organizations and professionals can use to deliver comprehensive, continuous and longitudinal care for children and youth with epilepsy.  It offers practical, experience-based principles to facilitate a high-performing care coordination program within the context of the medical home model.

Training Modules:

Acknowledgements:

The Care Coordination Curriculum for Children and Youth With Epilepsy (CC-CYE) is based on the Pediatric Care Coordination Curriculum created by the Children’s Hospital Boston. The Pediatric Care Coordination Curriculum has been modified to suit the needs of the population served by the National Center for Project Access, specifically children and youth living with epilepsy. The CC-CYE is funded through an Innovative Strategies and Promising Practices Grant (H98MC20271) from the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. The CC-CYE Project Team is comprised of Phyllis George, MPH, (Program Manager, National Epilepsy Foundation), Helen Dao, MHA, (President/CEO, Dao Management Consulting Services, Inc.), and Michael J. Martin, MS, MBA, (Science and Technology Journalist).

The Pediatric Care Coordination Curriculum was funded through a Family Voices’ cooperative agreement (U40MC00149) with the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. The Project Team for the curriculum included Richard C. Antonelli, MD, MS, David M. Browning, MSW, BCD, Patti Hackett-Hunter, MEd, Jeanne W. McAllister, RN, BSN, MS, MHA, and Wanessa Risko, MD, DSc. Noelle Huntington, PhD, served as the Project Evaluator. The project team acknowledged Marie, Mann, MD, Project Officer, Maternal and Child Health Bureau for her consistent support and invaluable input on the project. The Project Team also thanked Wanessa Risko and the Pediatric Physician’s Organization at Children’s for collaborating with them in the pilot phase of the project. Special thanks also were given to Jonathan Modest, Sue Swain, Kathy Moriarty, and Erin Ward for their roles as facilitators of pilot sessions.

Contributors to the Pediatric Care Coordination Curriculum included:

Richard C. Antonelli, MD, MS
Assistant Professor of Pediatrics
Harvard Medical School
Medical Director of Physician Relations and Outreach and Integrated Care
Children’s Hospital Boston
Boston, MA

Jeannie Austin, RN, CPNP, MSN
Regional Program Manager
Educational and Developmental Intervention Services (EDIS)
Northern Regional Medical Command
Washington, DC

Clement J. Bottino, MD
Clinical Fellow in General Academic Pediatrics
Division of General Pediatrics
Children’s Hospital Boston
Boston, MA

David M. Browning, MSW, BCD
Senior Scholar, institute for Professionalism and Ethical Practice, Children’s Hospital Boston
Lecturer in Anaesthesia, Harvard Medical School
Boston, MA

Anne M. Capinelli, MD, MPH
Pediatrician, Chicago Family Health Center
Chicago, IL

Kathleen Conroy, MD, MS
Staff Physician, Children’s Hospital Boston
Instructor in Medicine, Harvard Medical School
Boston, MA

Marion Donohoe, DNP, APN,CPNP-PC
Assistant Professor, DNP – Public Health Option
University of Tennessee Health Science Center – College of Nursing
Memphis, TN

Eric Fleegler, MD, MPH, FAAP
Assistant in Medicine, Children’s Hospital Boston
Instructor in Pediatrics, Harvard Medical School
Boston, MA

Eileen Forlenza
Director, Family Leadership Initiatives
Prevention Services Division
Colorado Department of Public Health and Environment
Denver, CO

Patty Hackett-Hunter, MEd
National CYSHCN & Family Advocate
Executive Director, Hackett & Hunter Solutions
Norwood, MA

Noelle L. Huntington, PhD (Project Evaluator)
Director of Fellowship Research
Division of Developmental Medicine
Children’s Hospital Boston

Linda L. Lindeke, PhD, RN, CNP, FAAN
Associate Professor, School of Nursing and Center for Children with Special Health Care Needs
University of Minnesota
Minneapolis, MN

Jeanne W. Allister, RN, BSN, MS, MHA
Director, Center for Medical Home Improvement, Crotched Mountain Foundation
Adjunct Assistant Professor of Psychiatry & Pediatrics
Dartmouth Medical School
Hanover, NH

Betty Presler, PhD, APRN, CPNP
Advanced Practice Care Coordinator
Shriners Hospital for Children
Lexington, KY

Wanessa Risko, MD, DSc
Director of Education
Associate Medical Director
Pediatric Physicians Organization at Children’s Hospital Boston
Boston, MA

 

 

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