family at NWE

One of the biggest concerns for people with epilepsy and their families is how it affects day to day life. Do they need to restrict their activity and if so, how? Other concerns may arise such as how seizures may affect family life, other relationships, school, work or recreation.

Coping with epilepsy is different for everyone. People with well-controlled seizures may have different issues or concerns than people with poorly controlled seizures. Also, having a lot of seizures and taking seizure medications may affect how people think, feel and their ability to cope with the effects of their epilepsy. Experiences and concerns will also be different if you are a young person, parent, adult with seizures or senior. Gender also plays a role in how we view epilepsy, how we cope, and what issues we may face.

While there is no magic formula for how to live with epilepsy, consider these questions. They’ll help you think about your needs and where to start.

  • How does epilepsy affect you and your family?
  • Do you know your rights and responsibilities to manage your health?
  • Do you know your rights and responsibilities in preventing or coping with possible discrimination?
  • Do you know how to balance the need to stay safe and live life the way you want?
  • Do you need information on safety tips and resources?
  • Do you know how to find supports and resources you may need?
  • Do you talk about living with epilepsy? If not, would it help to hear others talk about it? How about talking with others, right here on, at, or in person with people at your Epilepsy Foundation affiliate?

Explore this section on your journey to live with epilepsy.



Authored by: Steven C. Schachter, MD | Patricia O. Shafer RN, MN on 9/2013
Reviewed by: Patricia O. Shafer RN MN | Joseph I. Sirven MD on 2/2014