Community Forum

Menstrual cycle and temporary epileptic type activity



Hopefully somone out there can help me - I'm desperate at this point !

Recently diagnosed with mild epilepsy and I'm on severe meds which is dramatically affecting my life, my last chance to have children and my work prospects.

I am 40yrs old. Over a year ago, I had a major interrupion to my menstrual cycle for the first time ever. My cycle was as regular as clockwork, and all of a sudden I had 4 months of crazy periods - one came after Day 18, next Day 40, next Day 53 etc until it finally settled down to 28 days by itself. During this time I was depressed, easily annoyed, angry, no motivation and difficulty with concentration (where I would tune out almost but still carry on succesfully with the task I was doing at that moment e.g. driving, cleaning etc).  I had about 4-5 of these lapses in concentration during that time, each lasting typically 3-5 seconds. I told my GP all the above and she sent me to a 'not-very-nice' Neurologist who labelled me with Mild Epilepsy and has put me on 4 consecutive severe meds and all have been a disaster.

MRI and EEG all normal. No concrete evidence of any epilepsy and now my Neurologist wants to ban me from driving which means I will have to give up my job. I am devastated especially when it's based on very little. I never had any lapses in concentration since my cycle has settled. Hey, we all have lapses in concentration - but does that mean everyone has Epilepsy? !

I have read about Catamenial Epilepsy and its link to hormones/cycles etc. But has anyone out there had the temporary lapses in concentration like me above and then it goes away?

I feel I don't have Epilepsy (I may be wrong). But I cannot cope with the extreme side effects of medicaltions for a condition I may not have and for something that was so mild.

I am seeking a second opinion from a supposedly brilliant Neurologist, but it may take 4 months to get an appointment. Second opinion is of paramount importance right now. I feel my previous Neurologist is trying to cover his own a$$ with his diagnosis of me and the driving ban etc.

Thank you for listening. Would love your insight.


Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

24/7 helpline