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Juvenile Myoclonic Epilepsy
Wed, 11/18/2015 - 08:00Hi everyone,
i am 22 and was diagnosed with Juvenile Myoclonic Epilepsy at the age of 13, i am very fortunate that my seizures are controlled with Keppra 500mg in the morning and 750 mg at night, the only thing i experience now is myoclonic jerks in my arms. I am very strict with my sleeping regime and make sure i get 8 hours every night, i do drink but never more than one night in a row and always take it easy the next day. It really frustrates me that i still get myoclonic jerks in my arms occasionally when im tired, during my menstrual cycle or through periods of high stress and anxiety and was wondering if anyone else experiences this and knows how to make them stop? Going to my doctor terrifies me because i am so worried about having my driving license taken away (i know i am 100% safe behind the wheel as the jerks are very subtle and rare) Part of me thinks it may be a case of mind over matter as the more worried i get that my arms are going to twitch slightly the more it seems to happen!
Any advice or experiences would be appreciated, i know i am incredibly fortunate to have such good seizure control but part of my just wants this last little thing to go away! I would like children in the future and i know i wont be able to keep such good control over my stress and sleeping patterns then.