IVF?

I'm not sure if any women on here have periventricular heterotopia(which is the cause for my epilepsy) but I was at my genetics clinic this morning for a follow up appointment as they now found the cause of why I have this and epilepsy and it's because my FLNA gene has a duplication and a depletion which I guess is quite rare. The genetics specialist told me about the options for pregnancy and there was obviously the natural and normal way but with that there is a chance that I could miscarry a boy or a chance that he would be full term and die shortly after birth or he would die as a teen/young adult because he would be severely handicapped( practically brain dead) and the thought of that tears me apart. Another option is at around 10 weeks they would do testing to see if the embryo carried the bad gene and if so they could terminate the pregnancy but I really don't think I could willingly kill a baby. The third option is IVF where they would extract my eggs and my partners sperm and look for the ones that have the good X chromosome and then use those so it would be sure that the baby would be healthy. If I conceive a girl it would be a 50/50 chance of her inheriting it but it's what would happen with a boy that terrifies me. I'm wondering if anyone knows of anyone who has done this or has done this themselves? I realize asking this because I'm thinking about going this route someday may seem like I'm being selfish in wanting a healthy "normal" child but I would really like some feedback or personal experience.