Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Epilepsy Meds, Breast Cancer & Tamoxifen
Sat, 05/17/2014 - 12:41I've been on Dilantin or generic phenytoin for 21 years. My seizures are well controlled, I haven't had a grand mal seizure in more than 11 years, and that was when I tried to wean myself off the drug. Last July, I was diagnosed with breast cancer, had a bilateral mastectomy, chemo and radiation therapy. My oncologist has now prescribed Tamoxifen for 2-3 years. I asked about an interaction, and requested a phenytoin level check with my latest blood work. My neoro's office called me to reduce my dosage a little, and then I got a message from my onc's office that I'll need to change anti-convulsives because phenytoin reduces the effectiveness of Tamoxifen. I am certain that I'm not the first epileptic to get breast cancer. Has anyone else taken anticonvulsives with Tamoxifen? Which one(s)? Am I unreasonable in the feeling that my medical providors should have checked this out before putting it on me? My medical history is no secret. Thanks for your help!