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Epilepsy

Tue, 06/16/2015 - 00:32
One year ago Feb 2014 I had brain surgery. I had a craniotomy having 2 tumors-1 behind my left eye into my optic nerve & 1 in my temporal lobe. All but a small amt of the behind my eye was removed. Radiation took care of the remaining which was done in July the same year.I did notice some weakness on my right side & cognitive issues. Surgeons thought it was odd for me to hv these issues but recommended a speech therapist. Then in Oct 2014 I had a procedure on my left eye since the radiation had shrunk the eye some. Note that prior to this I would experience episodes of what I call brain break down from too much stimulation. When this happened I really could not function--talk clearly, think, get lethargic & seemed like my right side become weak. I just dealt with it. Then I had the eye procedure & all heck broke out. I experienced pain right out of surgery. Do bad that I was rushed to hospital right away. I apparently was doped up , ct scan & just swelling. That week I was taken to hospital 2 more times from extreme pain. Same thing was done. 3rd time I was in so much pain I became afraid as I told my husband call 911 because I felt something happen to my right side of my body. Did not what because of so much pain. I ended up passing out & going unconscious. My husband said hospital ran a ct scan pumped me up with meds & figured it was some surgical swelling. When they were ready to release me again, suddenly my head went backwards, lost balance & feel.backwards on the bed. My husband refused to sign release. Long story short-in the hospital I got 2 sets of nerve blockers in 1 week & lots drugs. I don't remember most of my days until around the 5th or 6th day when I tried to get out & could not stand on my right leg & seemed my whole right side was weakened. No stroke. Next thing I know I am being sent to rehab. There things worse as I had these strange seizure like episodes. When they tried too walk me, after few feet my head and then miss section then legs would just give out. Never have I ever had seizures before. Longer story short, I have had more therapy at home. I have had some "seizure like" episodes. After tests Eed showed showing in my temporal & parietal lobe. I also found out that I have a cavernous angioma around same area. I too have been told I need a psychologist& have anxiety. Well how do you explain my whole right side???? Now if I over work my foot or hand I.Have nerve pain. Is that anxiety?? I was on Keppra. Since my episodes are not seizure related, I don't take. I do take neurotine. Could it be that angioma is re acting off the inflammation from the brain surgery & eye surgery causing me so many issues with pain in that area plus over active sensory system? Sometimes I feel so crazy & if it is in my mind our not??!!

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