Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Coping with Complex Partial Seizures(CPS)
Mon, 09/01/2014 - 23:09I was diagnosed on my 14th birthday. My birthday was last Friday, August 29th. I was diagnosed with Complex Partial Seizures. Being diagnosed scares me to death. I have been having seizures weekly for the past 6 months. I stare off into space, have small hand twitches, and I'm silent. They are becoming longer as time passes. I have had eeg's, MRI's and exams and every time the results said I was good. After waiting to see the neurologist for 4 months, I was hoping to hear the same thing, I'm good and healthy, but instead I heard, you have complex partial seizures. Hearing those fives small words killed me inside and In the past 4 days, I have probably cried 20 times. I don't understand why. I ask myself why me, but others around me tell me to ask myself, why not me. I don't know what to do. My family (grandparents, aunts, uncles, cousins) don't know what to say and many of them ask dumb questions like "is it scary", "what's it feel like", "what about driving", and "can you still babysit". Like really, how am i suppose to answer them. Of course it's scary, it feels crappy and bad, yes I can't drive, and if you trust me with your kids still, sure.